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From another thread: I think that 8:10 pm in the Netherlands is 7:10 pm in the UK.

Thanks for posting that, @Effi - I'll give the livestreaming its own thread so that people realise, and I'll add it to the calendar.

First in what will apparently be a series, with PWME Ben Howell interviewing a series of scientists from his bed via Skype. This one is an hour. I think it may be an OMF thing (it's on their YouTube channel) so is likely to focus on their contacts. Transcript here...

Good for David Tuller to go, perhaps...

https://twitter.com/MEAssociation/status/928594578592223232

That's superb - so happy to see that on the BBC site.

Just wondering about this. We tend to be familiar with the 2-day CPET (cardiopulmonary exercise test) showing that, unlike other people, PWME do worse on Day 2. But is a one-day CPET useful for flagging up co-morbid conditions or possible alternative diagnoses? I speak as one who doesn't...

The authors are all in New Zealand, so yes, it seems so.

No shit, Sherlock - but congratulations to the authors for doing this work, ridiculous as the need for it has been.

Published back in August but I didn't notice it then. Small pilot study. http://onlinelibrary.wiley.com/wol1/doi/10.1111/cpf.12460/abstract

A positive article was published in the Daily Mail online site yesterday about the Newcastle cellular biogenetics research: http://www.dailymail.co.uk/health/article-5058807/People-chronic-fatigue-syndrome-exhausted.html Interestingly, it included a sidebar devoted entirely to the PACE...

Good idea! I've edited the OP. Edit: And crossed with Andy. :)

New thread for that, @MEMarge?

Because this is the internet, I always try to remember to write as though any person I'm writing about is standing right next to me! :):eek: Because essentially, they are.

The main biomed charities all seem to have them: ME Association: http://www.meassociation.org.uk/shop/gifts/our-2017-christmas-cards/ ME Research UK: http://www.meresearch.org.uk/christmas-cards-2017/ Invest in ME: http://www.investinme.org/shop.shtml

Very true - but I think that's what's most interesting is the recognition that the usual stuff doesn't work.

Ignore the article's actual title: this is interesting. Read the rest at: https://scienmag.com/depressed-with-a-chronic-disease-consider-alternative-therapies/

All very Star Trek: Read the rest at: https://scienmag.com/reprogramming-gut-bacteria-as-living-therapeutics/ I wonder if they're aware of ME/CFS?

The MEA is broadcasting this call for help from a journalist: https://twitter.com/MEAssociation/status/927431823424196608 For those not on FB, the MEA on FB said: Are you having problems with income protection policies? Can you help a journalist? If you are having problems with an income...

I think that needs a new thread of its own, if you'd like to start one, @Inara (thanks for asking! :))