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I just clicked on the #cochraneforall hashtag and saw some very good tweets by PWME who were doing us proud. Thank you! :balloons:

Can you break your post up a bit please, @NelliePledge? A lot of us struggle with big blocks of text.

Yes, in Solve's tweet the weblink starts www.Solvecfs.org but it immediately takes you to this other thing. I agree!

This paper: The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem by @Jonathan Edwards and several patients, that summarised the biomedical state-of-play in ME/CFS, was published in Fatigue: Biomedicine, Health & Behavior in April 2016, i.e. 18...

Bump! Starts in a few minutes.

I got to it direct from the link in Solve's tweet here: Would you rather delete the thread if you think there's a problem?

This interview was published on Oct 11, 2017. I haven't seen it posted elsewhere. Haven't read it yet but it has a contents list! Introduction Leptin and Chronic Fatigue Syndrome Neuroinflammation and Autoimmunity Blood Tests for Pain and Fatigue Gut Inflammation Blood Pressure Visual...

I think David Tuller would be a great speaker to suggest - he must be pretty unique in being crowdfunded by patients to tackle some bad RCTs.

After a bit of googling, I see that it was mentioned on another forum as something that Kenny de Meirleir was rumoured to be considering trying for ME/CFS but there's no information about a trial, AFAIK.

I thought you'd made that one up, just to catch us out! But it's real: https://en.wikipedia.org/wiki/Filgotinib I've never heard of an ME trial on it, though - have I missed something?

A little bump for this - I think it's on at 12:30 pm today.

It was only a couple of months ago that I found out what 'neo-liberal' actually meant, and up until that point I'd been thinking it described someone who had newly become liberal and I'd always thought, 'Oh, that's nice.' :)

Actually, that might not be a bad idea - they might pass it around the practice! :)

So sorry to hear that, @Mij.

What a shame - that was a great idea, Graham.

In terms of access, livestreaming is the only chance a lot of us would have to access the conference.

What's a screener link? Anybody know?

This seems to be a new initiative: More here: https://www.omf.ngo/science-wednesday/ The first one was 29 Oct: https://www.omf.ngo/2017/10/29/introducing-omfsciencewednesday/ And the next, 1 Nov: https://www.omf.ngo/2017/11/01/personalized-medicine/ I found both of them via the...

Good idea to contact the Unrest team! (I meant #MEAction rather than the ME Association, but either way, the Unrest team is the better choice. :))

I wonder if that should be 'billion'? Worth contacting #MEA with these good points? (Sorry I am unable.)