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  1. Sasha

    Solve's "#Cash4theCause of ME/CFS" fundraiser - vote with cash to get webinar in that area

    Unusual idea for a fundraiser! What do YOU think causes ME/CFS? We want to hear from you! The underlying cause of ME/CFS is still a mystery… one that we are working hard to solve every day. We know there are many different theories and avenues to explore, but we want to hear what our community...
  2. Sasha

    Pharma industry newsletter on ME/CFS drugs ('Pink Sheet') - Ampligen, Rituxan and KPAX-002

    He talks about it in this video (first on his list, about 1 minute in):
  3. Sasha

    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    Sorry to hear that so many are having these additional health problems! But I wonder if I can steer people back to the topic of the thread... which is, are we at higher risk and if we are, what can we do about it?
  4. Sasha

    Jane Colby Tweet Forward ME

    I've been looking over the past few days (at Jane Colby's and the MEA's Twitter feed) and haven't seen anything.
  5. Sasha

    Free 'Unrest' tickets for BFI (London) showings 4/5/6/8 Nov for medical professionals & scientists

    These appear to be special showings at the British Film Institute in London. https://www.unrest.film/medical Please spread the word to medics & scientists who might want to go! :)
  6. Sasha

    Pharma industry newsletter on ME/CFS drugs ('Pink Sheet') - Ampligen, Rituxan and KPAX-002

    This is some sort of industry newsletter, and Zaher Nahle of Solve spoke with the people who produce it...
  7. Sasha

    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    At yesterday's panel following the screening of Unrest at the London School of Hygiene and Tropical Medicine, Luis Nacul (I think) said that he thought that PWME had a raised risk of cardiovascular disease and diabetes (have I got that right, @Jonathan Edwards?) If so, is that likely to be...
  8. Sasha

    3 Nov | Ron Davis speaking on ME/CFS at Stanford-EBML Personalised Health Conference

    So nothing new that I could see, but good that he's out there trying to get other researchers interested. Good that he promoted 'Unrest' too (assuming that he did, not just the Stanford tweeting people).
  9. Sasha

    Sign! Unrest' US & global petitions for more ME/CFS research funding

    It's a new one on me, which is why I posted it. And it has quite low numbers for a thing pushed out by the Unrest team, which suggests it hasn't been going long. ...just had a quick look on meaction.net and they seem to be the same ones as on there (I think they're linked because they're...
  10. Sasha

    3 Nov | Ron Davis speaking on ME/CFS at Stanford-EBML Personalised Health Conference

    Doh! If you click 'Latest' it puts them in order of the most recent first. :banghead:o_O About 25 mins to Ron Davis's talk now.
  11. Sasha

    3 Nov | Ron Davis speaking on ME/CFS at Stanford-EBML Personalised Health Conference

    I'm not sure what it is you're seeking to do, MEmermaid! :) All we need (I think) is for anyone who's interested to go to Twitter and put in some appropriate search term or maybe choose a particularly useful Twitter account to follow. Maybe Stanford Genome Tech is the one to follow...
  12. Sasha

    3 Nov | Ron Davis speaking on ME/CFS at Stanford-EBML Personalised Health Conference

    We do, apparently - @Adrian runs it. I don't know the address, though. Would that help?
  13. Sasha

    3 Nov | Ron Davis speaking on ME/CFS at Stanford-EBML Personalised Health Conference

    Do you think there's a better thing to use to get the latest tweets to show up? Hard to get information on the latest talks, otherwise.
  14. Sasha

    3 Nov | Ron Davis speaking on ME/CFS at Stanford-EBML Personalised Health Conference

    I can't remember where I got that link from but the tweets it lists aren't in temporal order, which is a bit of a pain. It's based on a hashtag, I think. Does anyone with a clue about Twitter have any suggestions?
  15. Sasha

    Eran Segal (Solve grantee): Personalised microbiome-based diets for blood glucose regulation

    My impression was that that was the claim (although other factors apart from the microbiome analysis were fed into the model) - but perhaps the claim (or the truth) is that the variation in how the various foods are processed in the body affects the microbiome, rather than the other way round.
  16. Sasha

    Sign! Unrest' US & global petitions for more ME/CFS research funding

    Part of the 'Unrest' campaign. For US folks, a call to the NIH to fund ME/CFS research equally and fairly: https://www.unrest.film/nih-petition For everyone, 'We call on every government in the world to formally recognize ME and sufficiently fund research at the levels needed to treat and...
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