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  1. Sasha

    UK: 5 New Drugs a year to be fast tracked to patients

    If rituximab comes up good, then... :) I heard this mentioned on this morning's news and I think that part of the mechanism of fast-tracking was to run in parallel the assessments that are usually done in sequence.
  2. Sasha

    Eran Segal (Solve grantee): Personalised microbiome-based diets for blood glucose regulation

    I've just been listening to the very interesting videos linked to from your blog and in one of the (not sure which) Egan or his colleague say that you might indeed need to retest and tweak. That's been my question, too. :)
  3. Sasha

    Special screening of Unrest for MPs and honoured guests - oct 24

    I read that they just saw 20 minutes of it (so not a preview, a section).
  4. Sasha

    12:30 pm 5 Nov | Screw M.E. annual online fundraising auction for MEA/MERUK

    Great idea! Read the whole thing about this patient-led auction: http://www.meassociation.org.uk/2017/11/the-screw-m-e-market-auction-begins-on-sunday-5th-november-at-12-30pm-03-november-2017/
  5. Sasha

    News from Scandinavia

    Yes, I'm learning too and I think the calendar is brilliant!
  6. Sasha

    Research Conference in Oslo 20-21 nov with Davis, Hornig & Mella

    Is there a hashtag where we might find live tweeting or anything, @Kalliope?
  7. Sasha

    Eran Segal (Solve grantee): Personalised microbiome-based diets for blood glucose regulation

    I think it's right to be cautious with these things. But what interests me is that there's empirical data supporting the claim that the algorithm can predict what diet will bring down people's blood glucose (algorithm derived from 800 and confirmed in 100, if I've understood correctly). I...
  8. Sasha

    News from Scandinavia

    Hi Kalliope - how about starting a new thread specifically for this event, and adding it to the calendar: https://www.s4me.info/index.php?threads/how-to-add-a-thread-to-the-calendar.536/
  9. Sasha

    UK ME/CFS Biobank hosting Unrest screening with livestreamed Q&A after, Thurs 2nd Nov

    They're going to put a recording up at some point.
  10. Sasha

    UK ME/CFS Biobank hosting Unrest screening with livestreamed Q&A after, Thurs 2nd Nov

    Somebody (memory, memory o_O) said that in a few days, the LSHTM CureME group will be announcing a Justgiving fundraiser for £10k to raise money to fund a study to be run using biobank samples (researchers will have to apply and have their application assessed). I think a stretch-goal may be...
  11. Sasha

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    The status that Jen has gained in the public eye makes her expressing a view a powerful thing:
  12. Sasha

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    It's just that if someone is going to have to tweet, 'X said that Y said that...' then...
  13. Sasha

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    I hope I don't seem to be implying that @JohnTheJack is unreliable - it's simply that in order to make a strong claim (and calling anyone, let alone a public figure, is a strong claim), it's important that sources are primary ones. So whether John confirms what he was told or not, it's Gill...
  14. Sasha

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Thanks for understanding, Ezzie! We've still got Gill's views being reported by a third party and I think it really is important to get these things first-hand.
  15. Sasha

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    It would be good if this Gill would make a public statement.
  16. Sasha

    How to find a lightweight duvet?

    Interesting that the bamboo duvet has weights: "The 2.5 Tog weight is a super light 180grm2, with the 9 tog weighing 430grm2." That's grams per metre squared, presumably, so a double duvet (2m x 2m) would be 4 sq m and the 2.5 tog duvet would be 760g and the 9 tog would be 1720g, for a total of...
  17. Sasha

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Thanks, Ezzie, but we still seem to be getting our info indirectly (from an Andy Hugh now). I don't mean to be picky but in the past I've seen BPS people misquoted and while I understand that they're not popular and have a lot to answer for, I think it's important that if we're going to call...
  18. Sasha

    How to find a lightweight duvet?

    Thanks! I just went over there and asked for their advice. Unfortunately, their lightest microfibre duvet (to avoid allergies) is heavier than the one I already have (but at least they were able to find its weight for me!).
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