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@large donner, I agree it would be interesting to know if there are big donors who hold a certain view on PACE etc. but that conflict of interest would pertain whether Clare (or anybody) had a salary or not. Even if they were all volunteers, they might fear withdrawal of that funding if they hit...

That could be easily determined by a literature search.

I can understand that, but it doesn't seem appropriate to me to ask a particular (and junior) member of staff about their own salary. I think the issue of charity overheads is also fraught - those with low overheads may not be running themselves properly. All fair points, though!

https://twitter.com/PeterTatchell/status/981248768677904384

If I worked for a charity I wouldn't mind telling you whether it was a paid rather than voluntary position but I'd regard my salary as private information and I wouldn't tell you what it was. Why do you ask the question, @large donner? How does it relate to the topic of this thread?

Bread made with sprouted grains, probably.

I still wonder if its safe, though...

I thought artificial sweeteners were also supposed to be bad for you (and your microbiome)?

I agree, and my own comments are very much directed at AfME, not at you, Clare. But, thinking about the situation this afternoon, I worry about your personal position. I assume you're a good person trying to do the right thing. But right now, AfME's scientific incompetence is putting you in the...

No offence to you, Londinium, but I would seriously hope that no such anecdotal data would be cited. We're now in the bizarre situation in which patients on this thread are trying to explain to a medical charity why anecdotal data cannot be trusted. I'm sorry, Clare @Action for M.E., but this...

Calling @Jonathan Edwards's attention to this.

Thank you for replying. Any meaningful debate about the methodology is long over, and the results of the trial have been more than 'called into question'. They have been debunked, to such an extent that any reasonable interpretation of the trial's results is that they show that CBT and GET do...

Should be good! Can you add that to the calendar, @Kalliope? :)

Thanks, Andy - I've added the Hansard link.

Thanks, Andy. Do you mean a link to the Hansard account? Or the TV recording (if there is one - I can't remember)?

I think that if you edit a new tag into an existing post, it doesn't work (I think someone told me that once). So, @Action for M.E. - please look at this post: https://www.s4me.info/threads/pace-trial-tsc-and-tmg-minutes-released.3150/page-11#post-57880

Here's my attempt: https://www.s4me.info/threads/how-to-involve-your-mp-in-carol-monaghans-pace-campaign.3248/#post-57899 I'd welcome feedback (on that thread) before people start sending it off.

There was a call for a template letter on that other thread, so here's my attempt. Others should feel free to add theirs so that there's a bit of variety - but bear in mind that MPs are busy, so the shorter the better. Let's have a bit of discussion about whether I've got the template right...

I've started a fresh thread about this idea, which I think is very good. I will try to write something and add it to that thread.

From @Joan Crawford, on the thread about the PACE briefing document: Great document. Good tone. I'll encourage Chester MESH members to write to their MPs and include this document. I got this tip off from Forward ME member: Carol Monaghan MP can be limited in what she can do/achieve for...