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I thought similar when I saw that stat. I don’t know how narrowed down that is too given lots might be misdiagnosed and it certainly seems feeding issues might involve either dumping into a functional box, mental health or sending away. And some might never have come back (gone elsewhere ). It...

Wow that is quite an angle even vs eg three pillows

A way not to have to hear the real stuff so they can if they want carry on doing harm and pretending it bith doesn’t exist and isn’t the consequences of what they recommend med in the past It’s absolutely about healing denial and whitewashing by those who can’t let go

Yes. I was thinking there might be n issue of trying to push a whole new definition of what the illness is through this s I’ve watched the proms come through and this is no different . But it might be their false beliefs / lack of understanding of it plus unwillingness to hear that new...

Bloomsbury Mentorship Programme 2024 In case anyone here is a writer of fiction and would be in a position to benefit from the prize which involves a mentor and other things. Those with a disability are listed among other underrepresented backgrounds eligible to apply. "Submissions for the...

This might be relevant to have its own or another thread (but it relates to the articles above) and I think if I haven't posted this before, even though I drafted a post ages ago when I found it, it was because I didn't quite know what to call the thread, but this is relevant to the...

Yep I agree. If they leave that loophole in they could inadvertently make it not just more likely, but more covered up too. Unintended consequences of targets. 'do something' when the clock hits 4hours even if it was discharge is something ringing in my mind. What options are going to be on...

I don’t think I’ve ever tried it without or would be comfortable enough . In the past when I’ve been in hotels etc I’ve used towels or even bought extra pillows if there weren’t extras available? but I have so many pillows and move position so much I couldn’t guarantee what angle I sleep the...

If you put on a really good tv programme that has subtitles do you find that you then can’t keep your eyes open?

Yes I know now it says elevate. And realising that’s what I do anyway with the pillows and cushions and zero gravity chair But realising I might have been saying things wrong or not specifically enough for a while now :banghead:when I say put feet ‘up’ its ambiguous as I mean like on foot stool...

By elevate legs I assume many of us mean just having them level ie like “put your feet up” in Uk means on a footstool, sit on sofa sideways so feet aren’t on floor. I do however do a half way house as I have pillows in bed or cushions on sofa so my legs are slightly raised due to an injury but...

Agreed. Telling people to do less when they are in a different situation to you and you aren’t giving their boss or family a good talking to that things will only get worse if they don’t give way now so they stand a fighting chance is the horrific plight of most. I’ve always been sceptical of...

Only read the abstract and I’m intrigued by the why glad it isn’t done by subjective I prefer a cool fizzy drink too so there would be all sorts to question on any ‘how do you feel’ measures.

There are parts in mine where they are on the wall - even if they aren’t the major waiting room my old surgery it was a whole cabinet in that main waiting room and all round the receptionist area . There was a lot of queuing eg to talk to receptionist even so ones in the foyer even made sense...

I’m all for anything that focuses on debunking the fatigue misinformation and wonder whether the upside of these things is that I’ve realised healthy people go to the GP more than I realised . And everyone is a hostage in that waiting room. Not all of them have Wi-Fi phone reception etc...

Are there any areas or even sub areas in the country where the offering is anywhere near good enough that it could be made into a clinic that does cover all the spectrum just with follow ups and no silly courses or connections that would put people off? Might be worth a private thread if this...

With other conditions do charities eventually get funds from non-sufferers to support those who aren’t the can pay membership and interact demographic but are what I dread to imagine given enough might have GPs who are hostile and not be believed by anyone close to them. the load with taking...

And if noone is doing a rotation that involves ME/CFS patients (and that needs to include mainly those severe, very severe and definitely not just the mild) being properly understood and studied and 'treated' there never will. So not only is there no teaching on it, there is no colleague (eg in...

I agree that I think we need to try and get the experts thinking on this one. Particularly if anything being gotten hold of is only measuring those who are 'accessing care' for a condition where coercion has been used to prevent/discourage people from doing so. But also what other illness...

I agree but with a however - which then starts to make me think something more nuanced is needed here. Specialist provision is an ambiguous term. I definitely agree in as far as the starting point needs to be that care offered needs to begin with the illest, as it would for any other medical...