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How to interview people with ME/CFS:

Note that they sometimes use the term "economic" in a way that is a bit confusing: e.g. "This coupled with a strained economic situation". They are referring to the individual financial situation of the patient rather than how the country's economy is doing. The corresponding author's first...

I presume @Samuel is referring to CO-CURE. To join this announcement list, which is not as active as it was in the past, send an email containing the text subscribe co-cure to listserv@listserv.nodak.edu

The image that comes up may not be correct but I can't do anything about that. The link goes to a comment by Kirsi Örn who has posted the translation.

Copy and paste URL to see translation on Facebook https://www.facebook.com/TomKindlonMECFS/posts/964184290396363?comment_id=964242563723869 A rough translation from the newspaper: "The life of a family in Bjärred before the murders NEWS January 19, 2018 Aftonbladet, Sweden The parents made a...

I just submitted the following comments. Thanks to @Sasha and @Graham for giving me feedback on an earlier draft. I am aware of another draft submission that is being made on this instrument (I was too late to the discussion to give my comments) so decided to restrict myself to a few comments...

Thanks. I posted them to this thread: http://forums.phoenixrising.me/index.php?threads/uk-mea-calls-for-get-false-illness-beliefs-cbt-to-be-ditched-as-primary-treatments-for-me.37782/page-15 Also here: ME/CFS: Graded Exercise Therapy. Experiences & Comments from 2015 (UK) MEA CBT/GET/Pacing...

30th Dec post

https://www.meaction.net/2018/01/15/the-public-testifies-about-me

Not the same piece

Tom Kindlon https://www.ncbi.nlm.nih.gov/pubmed/28709432#cm28709432_73366 The average four-point change on the 0 to 100 physical functioning subscale of the SF 36 is really quite small. I could imagine people without any therapy after being diagnosed could improve on average by that amount...

As discussed in this thread, my guess is Colin Barton sent it to Mark: https://www.s4me.info/threads/not-a-recommendation-alastair-miller-on-cfs.1685/

Posted by: "Dr. Marc-Alexander Fluks" Sent: Saturday 13 January 2018 10:46 To: LOCALME <localme@yahoogroups.com>; MEACTIONUK <meactionuk@yahoogroups.com>; MECHAT-L <mechat-l@listserv.icors.org>; Colin Barton <colin.barton@btinternet.com> Subject: Alastair Miller: The prognosis of CFS/ME The...