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  1. ladycatlover

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    And their carers. Husband cut his hours for the last few (maybe 4?) years of his working life to look after me, so paid less tax. Of course employer saved there, as he got less pension from them.
  2. ladycatlover

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    I'm so glad this wasn't in place when I went to the Walk in Clinic at St Thomas' Hospital with abdominal pain and constipation! They'd have sent me straight to MUS services without finding out I have diverticulosis, and at the time diverticulitis with sky high CRP which they gave me a course of...
  3. ladycatlover

    Positive and negative affect mediate the ... relationship between emotional processing and symptom severity ... in IBS, 2018, Moss-Morris et al.

    Preferably before they reach retirement age so they can be SACKED and have to fight their way through the convoluted UK benefits system! :emoji_imp: :emoji_japanese_goblin: :emoji_japanese_ogre: :emoji_smiling_imp: :emoji_rage: Plus sued as well for telling porkie pies about sick people...
  4. ladycatlover

    "Time for Unrest": ME article by Nathalie Wright

    Good for you @janice! :hug: And welcome to the Forum. :) I'm sure you'll have fun here. :party:
  5. ladycatlover

    "Time for Unrest": ME article by Nathalie Wright

    Hmm, I think maybe where you were made a difference. I started my secondary education at a brand new grammar school in Stanmore (now part of Greater London I think) with fantastic labs and enthusiastic science teachers. After 2 years there I was really keen on science. Then my parents moved to...
  6. ladycatlover

    "Time for Unrest": ME article by Nathalie Wright

    Interesting the forum stats! Might I make a suggestion? Certainly when I was at secondary school back in the 60s not many girls went in for science. Things have gradually been improving, maybe from the 80s(?) but now seem to be un-improving again. :confused: So my guess would be that some...
  7. ladycatlover

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    Thanks @Sean. :trophy@ Got it, off to have a read now. :)
  8. ladycatlover

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    I had the same problem. It seems to be a google group? In which case maybe one needs to be a member to access files there? No idea, just a suggestion.
  9. ladycatlover

    BBC Rip off Britain on Lyme Disease

    I meant to put this up sooner, but got distracted. :rolleyes: The other day (Wednesday?) the programme Rip off Britain had a section on Lyme Disease. It starts just after 13 minutes in. I thought it was quite good, though must admit I didn't see it all in detail as was distracted by having to...
  10. ladycatlover

    University College London launches open access megajournal to help solve the world’s biggest challenges

    I'm sorry I'm late to this thread - struggling somewhat recently. The tape recorder industry is making something of a comeback these days due to DWP insisting that if you want to record your assessment you must use a tape recorder, or rather either a dual tape recorder or two tape recorders...
  11. ladycatlover

    Breathlessness and air hunger in ME/CFS

    Nothing helpful to say about treatment or anything like that, but wanted to send my sympathy and some hugs. :hug: :hug: :hug:
  12. ladycatlover

    Low temperature

    Good luck dear @Wonko. Cyber hugs and The Vibes heading your way.
  13. ladycatlover

    Is the NIH/CDC going to use the right PEM definition for all their future research? Do patients need to act? Deadline 31 Jan

    Yes! I used to be like this. Now I'm less able and have problems doing anything at all let alone too much. Thanks to everyone contributing to this thread, it's been very interesting to read. Not up to commenting now (other than briefly above) after reading it all. Need to think it over, though...
  14. ladycatlover

    Using Heart rate monitoring to help with pacing.

    Just for clarity, I do *not* think I should be able to do everything with my phone. Being able to do it on my phone is my first experience of measuring HR (other than timing pulse at wrist using a clock with a second hand) and blood O2 (other than when I nearly passed out at dentist and he used...
  15. ladycatlover

    Who is Simon Wessely?

    Yes, I remember watching that debate and yelling and screaming at the TV. Really don't understand how I managed to restrain myself from chucking it out the window! ;)
  16. ladycatlover

    Buzzfeed News - A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience

    She must have been desperate to get enough subjects! Low take up of her trawling for kids to experiment on?
  17. ladycatlover

    UK House of Lords/ House of Commons Questions

    Well that's an easy question - even I can answer it. Nothing.
  18. ladycatlover

    PIP Tribunal

    I can vouch that F4J are fantastic. @Wonko, go to their FaceBook page and ask them there about this. You don't need to go into so much detail as you have here, just ask about the legality of being told to go to f2f hearing when you asked for a paper one. Though from what Luther says above it may...
  19. ladycatlover

    Using Heart rate monitoring to help with pacing.

    I'd like to find that person too. :rolleyes: I keep reading stuff and changing my mind as to which item I might consider buying. I can do HR and oxygen thingy (blood O2 level?) using phone, but not easy and not ongoing - have to decide to do it. Hope you find some help @Wonko. Best of luck to...
  20. ladycatlover

    Centre for Welfare Reform: "Deleted BBC News Item on Unum"

    Yes! And a Dislike for when someone's having a hard time for whatever reason - it always feels wrong to hit "Like" for someone getting sicker or having horrid doctor or not getting Benefits etc.
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