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:arghh: I'm so glad I don't live in Oxford.

I'm with @Daisybell! :banghead: :rolleyes: :speechless: :jawdrop: :yuck: o_O :arghh: :sick: :alien: :eek:

And I thought PPS stood for Post Polio Syndrome. :rolleyes:

I thought I'd take a look at the book on amazon... Totally forgot! :oops: Haven't looked at it even. :rolleyes: Or have I? It's on my Kindle, and labelled as "New", but when I opened it up it wanted to take me to the furthest read page, which turned out to be 89% read! :confused: Gone...

We attended the Royal Courts of Justice for the Judicial Challenge, in Feb 2009. Here's a photo of a couple of supporters. Taken just outside the back/side entrance that we had to use to get into the Chamber.

That wikipedia link doesn't include the disease Acute Flaccid Myelitis. Which to my mind resembles some cases of Severe ME in children? It appears that there may be an enterovirus connection, though it's only been found in a few cases.

Well blow me down - surely if you have a "medical complaint" it's only natural to be anxious about your health? Oh, of course not, you should believe the docs can make you better ("Just like that" as Tommy Cooper would have said). So hardly surprising it's common in CFS. :rolleyes: And they...

And the next thing will be they'll force you to hand over all your supermarket receipts (or they'll just take them) to prove that you're eating the wrong kind of food, or drinking too much, or taking too many over the counter painkillers or whatever. They prob look at your bank accounts...

The seeds look rather like pomegranate. But you can crunch up the seeds in the flesh of that of course. We have an international supermarket near us (on Lodge Lane for anyone in Liverpool) that has won prizes. OH shops there sometimes, so I'll ask him to enquire if they ever have bitter gourd -...

Back in the 60s I worked as a lab tech, and used to do ESRs. (Using the Westergren method, I have no experience of Wintrobe though I seem to remember they used that at the children's hospital) There's an article on how to do it here. And a bit about clinical significance too. If you look at the...

Sounds rather like the PACE trial doesn't it? :rofl:

That'll be the one from Liverpool I suspect. He was more interested in muscular dystrophy than ME. He was also the one who dxd a friend of mine with ME when later (private scan) it was found she had MS. I went for an interview for a job in his lab when I was looking for work after time off with...

There used to be another one that got subsumed into Action for ME. Mary Jane Willows used to be CEO and Crawley medical director. :arghh: I think MJW was on the last Nice GDG? Edited to remove Media.

I think there was something about this on the TV last week. Or if not this particular organisation, something very similar. I'll try and find if it's on catch up if I get the time - bit caboodled just now after Virgin Media bod came round several hours before expected to replace router and TV...

A friend of mine who I met through the local MEA group (back when they had local groups) was re-diagnosed with MS. Was originally dxd with ME by R H T Edwards of Liverpool Uni. After MS dx was able to obtain DLA, had always been refused when had the ME dx, despite physical condition not having...

:rolleyes: :rolleyes: :rolleyes: :rolleyes: :rolleyes:

I'm thinking of writing to my MP when we have a date. When I had my PIP assessment and complained to Atos I copied the complaint to her. She very kindly took it up with Atos, and sent me their reply to her. However they didn't touch on the comment my assessor made that my wheelchair wasn't...

Thanks @It's M.E. Linda. :) There's no time for anything these days because of Brexit stuff. It seems to have taken over all time in Parliament at present. :mad: They're all mad as a box of frogs currently from what I see on TV news and read in papers. :wtf: Is it worth having another...

Surf champion Tyler Wright reveals struggle with chronic fatigue Australian pulls out of final event of season in Hawaii ‘My brain hurts,’ says two-time world champion https://www.theguardian.com/sport/2018/nov/21/surf-champion-tyler-wright-reveals-struggle-with-chronic-fatigue

Thanks @Sly Saint. Not much use for housebound or bed bound then. (my bolding)