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  1. Kalliope

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    I like it. I was thinking that IF we can start a campaign, perhaps it can live on also after Tuller's crowdfunding is over? So perhaps the hashtag should be more general?
  2. Kalliope

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Love the brainstorming! keep them coming! I am completely out of further ideas myself right now, but will keep pondering.
  3. Kalliope

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Yes! Also I want it to be something non aggressive. Simply a support for research, which anyone can agree with.
  4. Kalliope

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Agree. Short hashtag is good. #Science4ME is a good suggestion, but perhaps a bit confusing if it refers to two different things. #PwME&Science perhaps?
  5. Kalliope

    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    I made a thread about this campaign idea here. Come join!
  6. Kalliope

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    I am sure many of you saw Michael Sharpe's latest tweet about Tuller's crowdfunding. That spurred a lot of response and, even better, donations to the crowdfunding. Could this actually be a resource for us? Can we turn badmouthing and negative characteristics of ME-patients and biomedical...
  7. Kalliope

    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    Wow. Michael Sharpe's tweet certainly backfired :) The Norwegian Refugee Council recently created the hashtag #Trollmelding (Trollmessage). If you see something infuriating on social media on racism, negative characteristics of refugees etc then as a response you can donate to the Refugee...
  8. Kalliope

    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    And this was Michael Sharpe's comment. It prompted me to give a second donation to Tuller
  9. Kalliope

    A general thread on the PACE trial!

    Peter Tatchell tweeted a support for ME-patients today Which was noticed by among others Michael Sharpe who responded with Edit To Add:
  10. Kalliope

    David Tuller lecture: CFS (aka ME) - Challenging the accepted dogma through research journalism

    Have watched it throughout the day with breaks. Great lecture which includes a lot of history and important context to the ME-debate. Would be a perfect opening lecture of ME-conferences in countries where the biopsychosocio GET/CBT-regime still rules.
  11. Kalliope

    David Tuller lecture: CFS (aka ME) - Challenging the accepted dogma through research journalism

    Works for me too, but it took a little while to download and was ready to start.
  12. Kalliope

    David Tuller lecture: CFS (aka ME) - Challenging the accepted dogma through research journalism

    Video from University of Tasmania of lecture held by David Tuller April 4, 2018 Chronic Fatigue Syndrome (aka ME) - Challenging the accepted dogma through research journalism Duration: 1 hour
  13. Kalliope

    BC Women's Hospital with info-film on ME/CFS

    Thanks for your input. Always appreciated. I don't know the institution behind this.
  14. Kalliope

    BC Women's Hospital with info-film on ME/CFS

    Canadian BC Women's Hospital + Health Centre has made this info film about ME/CFS
  15. Kalliope

    Merryn Crofts - media and inquest

    Rochdale Online with an in depth and informative article about Merryn Croft, her family and ME. Her family is doing an incredible awareness job for ME. I am in awe of them, particularly when they are doing this after having suffered such an enormous loss. Heartbroken family tell of how...
  16. Kalliope

    Norway: ME Forening (ME Association)

    See also: 2018 Campaign week from the Norwegian ME Association to increase knowledge Merged thread Guest blogger for Norwegian ME Association: "Opted Out" The Norwegian ME Association offers its website for patients and others who wish to share their ME-related story in a blogpost. The...
  17. Kalliope

    #OMFScienceWednesday - collection of the posts

    This week's #OMFScienceWednesday post Many of you have been asking questions about our red blood cell research. For this #OMFScienceWednesday, we examine the difference between RBC shape and RBC deformability, and how they relate to blood flow.
  18. Kalliope

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    A Post About Andrew Lloyd I know folks are eager to hear more about what I’m learning in Australia. I’m finding it challenging to have meetings, prepare for talks, conduct interviews, promote the crowdfunding, keep up with my BMJ Open correspondence, and also write posts about what’s happening...
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