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  1. Kalliope

    United Kingdom: Science Media Centre (including Fiona Fox)

    Here's an explanation for that, and a new one Those who disagree with this body of evidence cite review articles and reanalyses of trial data published in low impact factor journals such as The Journal of Health Psychology and Fatigue: Biomedicine, Health & Behavior
  2. Kalliope

    United Kingdom: Science Media Centre (including Fiona Fox)

    I was going to add more quotes from the text which I found unbelievable, but it was impossible to choose just a few.
  3. Kalliope

    Dutch ME/CFS Report with translations

    I spotted this on twitter today. An English news site in the Netherlands has written about the report: Dutch News.nl - ME sufferers "being let down by healthcare system" In an official report, the Gezondheidsraad said the chronic condition was too often downgraded to ‘fatigue’ or a problem...
  4. Kalliope

    Higher prevalence of ‘low T3 syndrome’ in patients with chronic fatigue syndrome: A case-control study (2018) Ruiz-Núñez et al.

    ScienceAlert (an Australian-based news site for science reaching an international audience of 20 million readers on a weekly basis) has this article: Chronic Fatigue Syndrome Might Have a Crucial Hormonal Link
  5. Kalliope

    ScienceAlert: One of The Biggest Myths About Chronic Fatigue Syndrome Has Been Debunked

    There's nothing new in this article from 17th March 2018. It gives a short introduction to ME and biomedical research, debunks GET and CBT as treatments and writes about the research at Griffith University in Australia. The article was first published last year, and is now published again...
  6. Kalliope

    Low-dose Naltrexone articles and experiences

    It seems quite a few ME-patients in Norway have tried this after a news-story a few years back about an MS-patient who experienced a lot of symptoms got reversed with LDN. She was able to start working again. That led to more awareness about the drug among doctors and some have been willing to...
  7. Kalliope

    Low-dose Naltrexone articles and experiences

    Threads about articles and people's experiences with LDN have been merged into this single thread. Medscape: Low-dose Naltrexone Explored as Option for Chronic Pain (by Miriam Tucker) Miriam Tucker's third article from the recent 2- day summit at the Bateman-Horne Center Low-dose Naltrexone...
  8. Kalliope

    #OMFScienceWednesday - collection of the posts

    Today's Science Wednesday post On this #OMFScienceWednesday we highlight a new project that OMF is funding, which proposes a new metabolic ‘trap’ hypothesis for ME/CFS. This project is just getting started under the direction of Dr. Robert Phair, Chief Science Officer of Integrative...
  9. Kalliope

    Medscape: Mast Cell Activation May Underlie Chronic Fatigue Syndrome

    Miriam Tucker: Mast Cell Activation May Underlie CFS "ME/CFS is a descriptive diagnosis of a bunch of symptoms, but it says nothing about what's causing the symptoms, which is probably part of the reason it's so hard for it to get recognition. So, the question becomes, What other pathology is...
  10. Kalliope

    David Tuller - Trial By Error: The Dutch Review; My Trip; Bristol's Silence

    Trial By Error: The Dutch Review; My Trip; Bristol's Silence
  11. Kalliope

    IFLScience: Scientists Discover The Root Of Autoimmune Diseases - And How We Can Treat Them

    Thanks for your input on this, @Jonathan Edwards It is not always that easy for us lay persons to distinguish between what is hype and what is hope.
  12. Kalliope

    IFLScience: Scientists Discover The Root Of Autoimmune Diseases - And How We Can Treat Them

    Yes, this title was a tad sensational, but interesting read nevertheless. Short summary of article: Autoimmune diseases are on the rise. A team of researchers from Yale University may have found an underlying cause by linking autoimmune reactions to a bacteria in the gut called Enterococcus...
  13. Kalliope

    News from Scandinavia

    Background A psychologist and previous ME-patient, Nina Andresen, says she got well by her own efforts and hard work. She used to work at the centre of excellence of ME/CFS at Oslo university hospital and started a facebook group for those who have recovered of ME by their own methods - as...
  14. Kalliope

    Unrest - reviews and general articles

    Excellent article about Unrest from The Wire - India A Film on Chronic Fatigue Syndrome That Tells a Story We Don't Normally Hear Beyond the candy fluff of ‘Women’s Day’, Unrest raises the bar for intersectional approaches for feminists, disability rights activists and allies. Even if you abhor...
  15. Kalliope

    #OMFScienceWednesday - collection of the posts

    Latest #OMFScienceWednesday post (07.03.2018) OMF-funded research: diagnostic and drug-screening technology On this #OMFScienceWednesday we continue our series on research projects that OMF is funding all over the world, with a look at efforts to develop diagnostic and drug-screening technology...
  16. Kalliope

    MUS: "Medicine has a sexism problem" by Maya Dusenbery

    Pacific Standard has a good article about Maya Dusenbery and her book Medical symptoms that medicine can't hear: A conversation with Maya Desenbery
  17. Kalliope

    David Tuller - Trial By Error: Yesterday's News from the CFS/ME Research Collaborative

    Yesterday's news from the CFS/ME Research Collaborative A recap of yesterday's news and an email to Sue Paterson, director of legal services at the University of Bristol with an inquiry of professor Crawley's new role at Bristol and of more details about Crawley's departure.
  18. Kalliope

    David Tuller - Trial By Error: My Exchange With Archives of Disease in Childhood

    We the patients care. This is about our health and our lives, for most of them it is just a job. I think this underlines how utmost important it is with proper patient representation and cooperation with patient organisations on all levels in medical research. Perhaps there should even be some...
  19. Kalliope

    A general thread on the PACE trial!

    No worries. You also had additional info :-) So great to see MP Monaghan keep pushing this!
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