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    Identification of distinct subgroups of Sjögren's disease by cluster analysis based on clinical and biological manifestations... (2024) Nguyen et al.

    INteresting. Is this approach to stratification/forming clusters something that might be relevant for ME/CFS? given they are talking about criteria within such groups (fatigue and dryness vs symptom clusters) that perhaps aren't biomarker-requiring but in this (and I haven't checked the...
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    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    now that is just pushing propaganda isn't it when you see it in such bullet-points of tropes and in the context of so many years after it has been proven things like WOrkwell and the Nice guideline. I'm sorry but I think it is time that dangerous disability bigotry needs to stop being allowed...
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    Opinion Appraisal of Clinical Practice Guideline: NICE clinical practice guideline for [ME/CFS]: diagnosis and management, 2024, Sarah Tyson

    This is an interesting point, particularly when combined with @Kitty 's experiences because here is the solution perhaps 'cut out the middle-man' and move any funding that might be associated with it to a group who are producing the research-led materials to eg the more 'general' services and...
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    American Psychosomatic Society no longer "Psychosomatic?"

    it's weird how they never talk about or research calming the body to help the mind. How someone having their body hurt isn't going to do the 'mind' much good, and maybe if you fix the broken leg both will be much better but if you gaslight them into therapy focusing on imagining their leg isn't...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I hate that having to just top-level describe the exact, objective, truth and reality which is extremely toned-down will be laughed at by people like the author of this. And mean that because I experienced abuse downsides and harms caused by the old 'regime' and noone steps in and noone will...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I'm not feeling well enough to reply in detail right now. But I think that we need to remember that this is for clinics, and people who cannot think beyond the behavioural. And sadly very similar information can be converted into that 'ethos' as would be for whatever this is for. I agree that...
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    Yep any excuse for ‘rule in’ seems like hunting out a ‘cover’ for dropping someone into a bucket they don’t intend to allow to be disproven. The only area of medicine that isn’t really looking at something to cure or understand it to cure it, but as a label to disregard anything else about...
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    Point 1. And any history of that ‘rule in’ test (Hoover ?) - including anything else it might have been used for prior to be ‘found useful for FND) is a very good point to ask for focus on
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    American Psychosomatic Society no longer "Psychosomatic?"

    Oh goodness of course their type assume they will never be held to account it just sells better for laypersons to pretend they are ‘taking care of the whole person’ and using buzzwords whereas laypersons know full well what psychosomatic means and it’s been debunked in history before which they...
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    American Psychosomatic Society no longer "Psychosomatic?"

    Actually worth saving all of these things and any articles on changes - of course psychosomatic try and hide that us who they are and what they sell (mind-body much?) getting evidence the society with the BOS as new name IS the one that is psychosomatic society is actually v important for the...
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    I keep going through the same thought processes without resolution

    Of course short term memory actually technically is part of executive function. Agree it sounds like a big factor is waiting until there is ‘fit’ between suze/length of short term memory and the particular‘chunk’ of the problem needed to be analysed. it may be eventually exhaustion and other...
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    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Yep sophists start with ‘what they want’ which eventually ends with self-kidding and not being able to see it. but it begins with seeking, then seeing, what they want and is based on being the type who just ‘wants to win an argument by saying lots of words that back up what they’ve decided they...
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    Renaming schizophrenia: a Japanese perspective, 2006

    I'm not sure the 'Integration disorder' this is translated to is 'sensory integration disorder'. The closest article I've come to describing what it might be in these terms is: Is Schizophrenia a Type of Neurodivergence? | Psychology Today United Kingdom and I say with caveats that this is just...
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    Renaming schizophrenia: a Japanese perspective, 2006

    I have found the following too, which is from 2014 and is interesting because it notes how these changes happened in other Asian countries following this (but how eg European has been slower to follow, despite it seems patients perhaps wanting such an update): Name Change for Schizophrenia |...
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    Renaming schizophrenia: a Japanese perspective, 2006

    Fascinating to think that so few patients were informed of the diagnosis, and that such a change in % informed happened just based on name change etc (which must surely mean it wasn't only down to how ill a patient was etc) Is not informing people of their diagnoses something specific to eg...
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    Nature: Four years on: the career costs for scientists battling long COVID

    Yep all the things that claim to be there to help are just extra energy and being played. Having a condition where people can pretend or choose not to understand because of the fantasy manifestos about ‘curing yourself with different thinking’ means bullying and ignoring is effectively allowed...
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    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    ’priming’ you mean? So that when someone jollily replies to someone’s comment with their story of recovery in a certain tone and that person says no thanks they are primed to suggest ‘that’s coz they r haterz who don’t want to get better’ type thing? Edited as had mulched an old post hadn’t...
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    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    yep. This was a good posting and I think it’s very insightful given other news about NIH (and wondering whether that is good or could be used for bad etc)
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    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    No your advice works but it’s probably worth me noting what it was. MEA fb makes a post about the article. Then as they often seem to do these days writes some ‘sticky’ comments as a continuation (to add further info whilst keeping post short I guess). One of these is EDIT the MEA noting there...
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