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There are ME/CFS twitterers out there. I know a few who have stopped using it recently, but at other times see ME patients presented as a marauding mass on there.

Aargh! I'd read that one not long ago as well.

PS: If anyone wants to carrying on my boring task, I went through pages 36-18, picking out the ones that interested me here: http://www.hra.nhs.uk/news/research-summaries/page/18/?s=chronic+fatigue&research-type&from&to It made hiding from trick or treaters so much more fun!

A couple of more recent Crawley ones: http://www.hra.nhs.uk/news/research-summaries/investigating-outcome-in-children-with-cfsme/ It looks like stuff is happening with MAGENTA, where the feasibility study is being folded in to the full trial. Someone was just explaining concerns they had...

I can be bad at finding stuff, but I was just looking through the HRA website and found reference to a few old CFS studies that I've not see published results for. I'm posting them here, along with a few others that were interesting to me, in case it would be of interest to anyone else... or...

I was just listening to Tuller's most recent Virology blog, where he was talking about digging into Cochrane's work. A thorough take-down of PACE would be great for the Cochrane audience too. JE mentioned having some involvement with Cochrane.

Thanks. I don't think I'd have read this, based on just the title and abstract, but it was an easy read and did have some fun bits, eg: PS: It left me feeling like a fan of this group.

There next conference is supposed to be all 'patient led': http://www.evidentlycochrane.net/cochraneforall-tweetchat/ Wonder if there's any way we could use that to get them to actually listen to patients?

The Cochrane review of exercise therapy co-authored by White has been due for ages. That's the number one thing likely to set us back imo.

Interesting. While it certainly seems that Crawley has been spinning away on what should be considered 'harassment', I also think that there's reason for some caution on this issue. It would not surprise me at all if she did have a collection of unpleasant and aggressive e-mails that had been...