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Welcome to the forum Mike, and thanks for all your work.

Aside from the fact that the organisation clearly does not respect their own professed standards.

Bristol Uni PR on the TEDx talk. http://www.bristol.ac.uk/ccah/news/2017/esther-crawley-tedx.html

I was just looking at the Nature press release for this: http://www.nature.com/press_releases/john-maddox-2017.html Some funny bits:

Best wishes... pleased to hear about your fun, sorry about your benefits pain.

Sorry if I sounded overly critical! I'd meant to be making general points, but looking back I can see that it could read like more of an attack on what you'd said than I intended. I know that there had been medical journal papers raising concern about links between the HPV vaccine and CFS/PoTS...

I fear that you may not be seen as being part of their 'in-group'.

I think that it would be a really serious mistake to tie concerns about CFS research to concerns about vaccinations without there being good evidence of vaccination causing problems. If patients ever go beyond the evidence in their criticism of CBT/GET, it can end up being used against all...

I wonder if anyone from Sense About Science fancies trying to defend the SMILE trial? The judging panel consisted of Professor Colin Blakemore FRS, Tracey Brown OBE (Sense about Science), Sir Philip Campbell PhD (Nature) Lord Rees of Ludlow OM FRS, Natasha Loder (the Economist). The judges sat...

Sounds positive. Thanks for sharing.

The reply from Bristol says: How does that make sense in response to Tuller's e-mail?: http://www.virology.ws/2017/11/22/trial-by-error-hey-bristol-where-is-my-cease-and-desist-letter/ It wasn't he who created this strange term of "a ‘cease and desist’ letter". He wanted Bristol to explain...

I got sent this video summary via @Simon M http://www.nejm.org/do/10.1056/NEJMdo005225/full/?query=featured_mhome

I think it was more likely down to thoughtlessness than any sort of corruption. Crawley was medical advisor for AYME, which was run by the terrifyingly stupid Mary Jane-Willows. I can easily see MJW being impressed by a few positive anecdotes, thinking that it would be good to run a trial on LP...

What is it with these uni's legal departments? This response reminds me of the misguided letter sent to Coyne: https://web.archive.org/web/20160314024024/https://dl.dropboxusercontent.com/u/23608059/PACE%20F325-15%20-%20Prof.%20James%20Coyne%20-%20Response-2.pdf I wonder if this is something...

This is not a cheering point... but some slow genuine progress would be better than most of what we've had over the last few decades!

Nick Brown is a PhD student with Coyne, and has made some comments on PACE.

How can they think that response is a good idea? It reads like: "We are not able to engage in any open debate on these issues, so instead, we have been doing all we can to apply pressure behind closed doors." My partner was imagining Bristol Uni having a little chat with Esther: "This American...

It's worth discussing where we think there are problems with an article, but I agree that it's also wise to remember that nothing will be perfect, and that we should be able to take some satisfaction from coverage that at least seems to be moving in the right direction.

Thanks Tom and MEmermaid.

I think it's good to try to see a range, rather than screen people on the basis of their views, then write a paper about their views. I'm deeply suspicious of all qualitative work like this tbh, but it's probably most useful when the researchers involved do as little as possible to manage the...