'Technically' there will be 'monitoring of outcomes and targets', but these have been very cleverly devised to give the appearance of 'over 50% recovery' in keeping with the standard IAPT agenda for anxiety and depression (as have been discussed on other threads). With regard to 'CFS/ME' the...
It (IAPT LTC and IAPT MUS) is being imposed on every Clinical Commissioning Group across England (by NHS England) - even though many are in financial crisis. I wonder if this is a contributing factor to why journal editors and Cochrane are trying so hard to avoid retracting the relavant trials...
The Accessible Information Standard applies to every person who has a communication problem due to either a disability or a health condition. It is not just for people with visual impairments and/or hearing loss. I've been meaning to start a thread specifically on it, but haven't found the...
I agree. Even if I did not have M.E., due to my autism I would not be able to participate in any consultations or research that used only phone and/or skype or a verbal interview (i.e. that required speaking verbally). Is it acceptable to exclude adults or children from any NHS research and...
I knew I remembered reading more about the planned referral and step up process for IAPT MUS (including CFS/ME). I have found the PDF on my laptop. The link to it is here...
You've asked for people to share their personal experiences in the public part of the forum. You may want to get this thread moved to the members only area.
Use the Benefits and Work guides, as others have said. They give you advice on every question and descriptor for both the UC50/ESA50 and for the PIP forms. They are written by lawyers specialising in the area of UK benefits. Worth much more than every penny!
Edit: They also offer advice and...
To save this thread getting too broad, I have started a thread for discussing IAPT MUS CBT further here:
https://www.s4me.info/threads/discussions-around-iapt-ltc-and-mus-relevant-to-nice.11220/
I've started this thread for discussions regarding the methodological issues and efficacy of the IAPT treatment model.
In particular the move to treat 'CFS/ME' as a MUS that can be referred for IAPT CBT/GET treatment is now highly relevant to the ME/CFS NICE guideline.
I think in regards to MUS they are intending for patients to see the 'High Intensity CBT therapists'. At least, the training manuals are directed at the more highly trained therapists and are currently being offered as 'top-up' training. I've seen the manual uploaded somewhere on this site...
I looked into this many years ago when I wanted counselling via my GP's surgery. I had to battle to get that via IAPT and was shocked at what was happening in the mental health services.
I'll see if I can find the evidence I used on my old computer (cost of IAPT was even higher earlier on), but...
I remember reading in relation to IAPT CBT that the NHS estimates the overall costs to be £100 per individual session to the CCGs, which is actually much higher than the cost would have been when the CBT therapist (or person centred counsellor) was employed directly by the GP surgery.
However...
Looks like they are focusing on unevidenced biomedical treatments, not psychotherapy, physiotherapy, rehabilitative treatments or 'alternative medicine'.
Yes, you can lease a powered wheelchair through the Motability Scheme instead of a car. However, if you need both then that is a problem unless you have the money to cover the additional costs, because most people with even severe M.E. will not be eligible for an outside powered wheelchair...
They must have relaxed their interpretation of 'identical' then, since the only way it is possible to acheive this in two copies is for a single device to make a dual recording with a single microphone. However, it is good if the DWP are being flexible in this now.
The downside to using amateur...
I don't think they will supply the recording equipment if you have a home assessment. Also, I'm pretty sure it has to be the official dual recording equipment (i.e. a specialist single machine that can make two simultaneous recordings on tape or CD - the type used by the police).
I followed this trial with interest as the young lady who previously supported me (for mental health reasons) dad was part of this trial.
She felt many of my symptoms were very like her dads (difficulty walking in a straight line, gait, standing upright, memory problems, tremors etc.) She...
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