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  1. Simbindi

    Using PCs versus laptops when you're mostly in or on your bed

    I don't want to take the thread off topic, but I posted about this ergonomic chair in the 'Show and Tell' thread: https://www.posturite.co.uk/rh-logic-400-high-back-ergonomic-office-chair.html https://www.s4me.info/threads/show-and-tell-things-youve-made-baked-grown-etc.400/page-13 (post 249)...
  2. Simbindi

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    The answer to that is 'Yes'! Lots of autistic friends with extreme noise (and light) sensitivities use them outside and in urban areas. They all describe them as 'life changing'. Theire Boss headphones noticably decrease their social anxieties too. I have used my Beoplay ones on an airplane...
  3. Simbindi

    How can I persuade my dad to get a stairlift?

    Would it be worth getting your mum onboard applying for a Disabled Facilities Grant for their house to better meet your needs. This involves a council led OT assessment (the initial assessment is free). She could leave involving your dad until after having the OT assessment/report as there is no...
  4. Simbindi

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    You will probably need to try them for yourself. If you suffer from tinnitus they might make this more noticable (which is why I think mine improve my comfort levels if I listen to soft music on them). I tried my friend's Boss ones in his house and they immediately cut out all the background...
  5. Simbindi

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    See below for an explanation of how the technology works: https://electronics.howstuffworks.com/gadgets/audio-music/noise-canceling-headphone3.htm
  6. Simbindi

    Obtaining Social Care in England for service users and carers: guidance and advice

    I'm just in the middle of watching a very distressing Panarama documentary on the crisis in Adult Social Care in Somerset (my Local Authority): https://www.bbc.co.uk/programmes/m0005jpf https://www.bbc.co.uk/programmes/m0005qqr
  7. Simbindi

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Most of my autistic friends use Bose noise cancelling headphones. They are possibly the best at reducing unwanted background noise. However, all the models are very big and bulky. I also have sensitivities to man-made materials, such as PVC/leather look vinyls. So a couple of years age I bought...
  8. Simbindi

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    I have previously worked in state secondary schools in the south west of England and my daughter is a secondary science teacher working in the state sector in Somerset. I know for at least the last decade it is standard practice to take an electronic register in every lesson, as well as morning...
  9. Simbindi

    Study finds psychiatric diagnosis to be ‘scientifically meaningless’

    Original research paper is available on Sci-hub: https://sci-hub.tw/https://www.sciencedirect.com/science/article/abs/pii/S0165178119309114?via%3Dihub
  10. Simbindi

    Study finds psychiatric diagnosis to be ‘scientifically meaningless’

    Many years ago* I found myself sitting in front of a CBT therapist - my first encounter with one (it was not M.E. related). I had asked my GP to refer me for counselling and thought that was what I was there for. At the time I was going through an extremely difficult divorce, facing homelessness...
  11. Simbindi

    Trial By Error: Some Thoughts on MUS and Bermingham; My Letter to Professor Payne

    This has mostly come about because of the Health and Social Care Act 2012. There was lots of opposition to it at the time, referring to it as 'the privatisation of the NHS'. For a quick insight see: https://en.wikipedia.org/wiki/Health_and_Social_Care_Act_2012 https://www.nhscc.org/ccgs/...
  12. Simbindi

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    I just randomly saw this last night so wanted to post a link to it without making any comment. However, on revisiting the site, it is notable that the list doesn't include 'Long term conditions', or the relevant links to the NICE guidance on, for example, diabetes, MS or Parkinsons.
  13. Simbindi

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    If you look up IAPT on the NICE website, CFS/ME is now formally shown under 'conditions managed by IAPT' (alongside clearly psychological conditions and also IBS): https://www.nice.org.uk/about/what-we-do/our-programmes/nice-advice/iapt
  14. Simbindi

    Studentship in process: A Mixed Method Exploration of the Association between Autism and Central Sensitivity Syndromes, Sarah Grant, KCL

    The hardest thing is that as a child/young person/young adult I used physical activity to cope with my autism problems. I used to love going out cycling (thought nothing of doing a 50 mile ride over the Blackdown Hills in Somerset, where I lived). I also loved hiking and camping. This is what I...
  15. Simbindi

    Studentship in process: A Mixed Method Exploration of the Association between Autism and Central Sensitivity Syndromes, Sarah Grant, KCL

    The first and second parts of her PhD seem very problematic given the issues with defining appropriate criteria for these 'CSS' disorders, the fact many autistic people only receive their diagnosis in adulthood (so many remain undiagnosed) and the issue of underdiagnosing females with autism...
  16. Simbindi

    Studentship in process: A Mixed Method Exploration of the Association between Autism and Central Sensitivity Syndromes, Sarah Grant, KCL

    I also am autistic and have M.E. However, I was diagnosed with M.E. a couple of decades earlier than when I received my NHS autism diagnosis. I usually say that my M.E. began after a severe upper respiratory disease which I had at age 25, when breast-feeding my second baby (I also had a 2 year...
  17. Simbindi

    UK Disability News Service: "Call for help to design a social security system of dignity, respect and trust"

    For those on the forum who don't follow UK news (so you can share the brillance of Wonko's comment): https://edition.cnn.com/2019/06/18/uk/nigel-farage-milkshake-sentence-gbr-intl/index.html
  18. Simbindi

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    Or on a more serious note, for those who want to understand what the concept was originially intended to acheive: https://www.kingsfund.org.uk/publications/social-prescribing
  19. Simbindi

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    'In the latest in our occasional series of fly-on-the-wall documentaries from the world of general practice we look at how non-medical advances are making life more convenient for patients and relieving pressure on busy doctors. This week we take the lid off social prescribing'...
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