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  1. Simbindi

    Clare Gerada: influence on UK medical practice and ME/CFS management

    There is, after all, only 3 letters difference between the words 'these' and 'their'...
  2. Simbindi

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Wasn't sure where to put this information, but today I discovered that Clare Gerada is one of the two co-chairs of the NHS Assembly. https://www.longtermplan.nhs.uk/nhs-assembly/chairs/ Members of the Assembly are expected to follow the '7 principles of public office' (I presume this applies...
  3. Simbindi

    Patient Access App article on CFS

    That's true, but I was particularly thinking about an updated and accurate article aimed at GPs for this site, as patients can point them to it because this is a site that is specifically designed to help give patients background information to improve the patient-GP consultations and to help...
  4. Simbindi

    Patient Access App article on CFS

    I thought this information was worth posting because the new ME/CFS Nice guidelines are due to be published next month. Therefore this may present a good opportunity for appropriate people to submit an updated article to this site. Maybe one that is more accurate in describing the full range of...
  5. Simbindi

    Patient Access App article on CFS

    There is also this article, which mentions ME/CFS and Long Covid: https://patient.info/news-and-features/what-you-need-to-know-about-post-viral-fatigue
  6. Simbindi

    Patient Access App article on CFS

    I was browsing through the patient information links on the Patient Access app [https://account.patientaccess.com/] that my GP practice offers registered patients for ordering their repeat prescriptions, providing access to their basic medical records, vaccination history etc. The following...
  7. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I was referring to how Paul Garner talked about his response to eating cake (highly refined carbohydrate) as a 'crash'. Lots of people without ME/CFS experience this, it is not something that is particularly linked to ME/CFS or post-viral syndromes (including Long Covid). Apparently he was...
  8. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He was frightened he was allergic after feeling ill the day after eating cake, that's a reaction to a single incidence, not noticing a PEM pattern that has changed since he had Covid and coming to a measured conclusion. There is also the issue of age and other factors here, lots of people...
  9. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    But he's saying this in the context of having Long Covid/Chronic Fatigue Syndrome symptoms, not as the physiological issue of having too much refined sugar in one's diet over a period of time. I also notice having symptoms if I've eaten too much refined carbohydrates over a few days. I never...
  10. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I'm not a doctor, but if I was noticing a link to sugar consumption and feeling 'crashed' my first thought would be potential diabetes...
  11. Simbindi

    UK: Abuse by paid and unpaid carers covered in new domestic abuse bill

    I understand this, I was in that situation as a parent with two young children for many years.
  12. Simbindi

    UK: Abuse by paid and unpaid carers covered in new domestic abuse bill

    Of course, this is an issue that requires much more than a single parliamentary bill to solve. It requires wholescale social change, suitable housing and a functional social care system. Beyond that there are the personal and emotional issues too.
  13. Simbindi

    UK: Abuse by paid and unpaid carers covered in new domestic abuse bill

    I made the post to highlight the amendments to the bill will include paid carers, unpaid carers and neighbours. This will mean that abuse from a paid carer would become a well defined criminal offence, which may deter 'casual abuse' from those who think their behaviour is acceptable.
  14. Simbindi

    UK: Abuse by paid and unpaid carers covered in new domestic abuse bill

    https://www.disabilitynewsservice.com/disabled-peer-secures-victory-over-government-on-domestic-abuse-bill/
  15. Simbindi

    England: Call for evidence on women's experience of healthcare

    https://www.gov.uk/government/consultations/womens-health-strategy-call-for-evidence
  16. Simbindi

    England: Call for evidence on women's experience of healthcare

    https://www.gov.uk/government/news/government-launches-call-for-evidence-to-improve-health-and-wellbeing-of-women-in-england
  17. Simbindi

    Covid-19 vaccines and vaccinations

    Especially important as you need to go into hospital for surgery and are clinically extremely vulnerable!
  18. Simbindi

    Covid-19 vaccines and vaccinations

    According to this document, they should have vaccinated all housebound patients in groups 1-6 by 14th March: https://www.england.nhs.uk/coronavirus/publication/covid-19-vaccination-deployment-next-steps-and-plans-for-weeks-of-8-and-15-march/
  19. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Surely if the professionals had taken the correct approach to individual patients who engaged in verbal abuse, by responding in a manner that de-escalates and diffuses potential conflict (as their medical training should have taught them to do), then patients such as the one in this twitter...
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