Search results

"From ME Essential - July 2004 MEA calls for PACE trial to be scrapped A number of criticisms concerning the overall value of the PACE trial and the way in which it is going to be carried out have now been made by the ME/CFS patient community. The ME Association believes that many of these...

Itching to do a fisk... ...but I'm not going to.

Just checked. It wasn't really full school attendence at all, although that's how they described it. This is from the paper: Fatigue was measured using the subscale fatigue severity of the CIS (Checklist Individual Strength)-20 (range 8–56). Physical functioning was measured using the...

FITNET-UK site FAQs says this about the Dutch definition of recovery: Maybe they should modify the definition below the table accordingly: *Recovery = full school attendence, moderate fatigue, 'normal' physical functioning (where 'normal' means normal for those with congestive heart failure...

I was quite shocked as to how this appears on the Red Whale update site. This is what GPs will see: When you click on More, you get this text: The only link to the Bath website, which is a little more toned down, is at the end of the pdf -...

A little. But I think you would quickly find The Lancet siding with the BMJ on this one. (RH really doesn't like the involvement of investigative journalists: https://www.bmj.com/content/342/bmj.c7001)

@ukxmrv - I noticed that Lloyd was cited in some of the early papers. This one is cited in Wessely 1989 [ref 18 in the extract below]: Lloyd, Hales, Gandevia 1988 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1032921/ Following on from the previous quote: "In general such advice is...

Which book?

In contrast to Wessely's approach, Dr Ho-Yen (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371214/) says the following (in 1990): Approaches to treatment It has been suggested that a new approach to the treatment of patients with post-viral fatigue syndrome would be the adoption of a cognitive...

@JaimeS and @chrisb - I think I've tracked it back a bit further. Wessely et al. (1989) [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1711569/] has this: The conventional view You are ill with a poorly understood disease. Physical and mental activity should be limited in an effort to prevent...

As far as I can tell, Wessely's older papers are entirely theoretical. He cites no practical evidence to back it up. This is what he says in the 1989 JRCGP article: It's back-of-envelope stuff!

The whole notion that the condition is "perpetuated by deconditioning" makes no sense if you then have to tell patients not to overdo it on their good days!

While reading the Ciba Foundation Symposium 173 papers (Wiley, 1993), I came across this quote from Peter White in one of the discussions (after Sharpe's presentation on Non-pharmacological treatments - p310): And thus, CBT/GET was born! However, I looked back at David McCluskey's...

This is what David McCluskey said about deconditioning in his Ciba paper from 25 years ago: From the discussions after Sharpe's paper, White talks about combining CBT and GET for the first time - but mentions GET in reference to McCluskey. I'm going to have to do more digging... [ETA: More...

I agree with @Tom Kindlon that CONSORT guidelines are useful, but they don't enable you to assess the quality of trials. They are simply a reporting checklist to make sure that info is reported - ie, have the said what randomisation method they used, what the primary outcome measures were, etc...

Maybe someone should ask? [ETA: In particular, when, where, which group?]

That's one interpretation, but I don't think even they go quite that far. I think they are willing to accept that the viral infection happened (and was not invented as such), and Wessely is certainly prepared to accept that it may even be the trigger, but they attribute all subsequent illness to...

Steadily working my way through. I've now reached the chapter by Susan E. Abbey entitled "Somatization, illness attribution and the sociocultural psychiatry of chronic fatigue syndrome". I wondered what others would make of this: This is used as a justification for use of CBT to correct these...

Maybe - or they could just like it to let me know it's been seen and noted. Or I could just stop being an impatient pedant... :speechless::whistle: [UPDATE: Tis fixed!]

I've tried to bring it to their attention on the FB page, but I think I must be muted or something (they've liked everyone else's comments except mine!).