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  1. Lucibee

    Correspondence from the DWP for 2004

    Message me your email address and I'll send it to you. I'm also doing the same with 2003, using your notes - I hope that's OK.
  2. Lucibee

    Correspondence from the DWP for 2003

    John, can I ask what question you posed for these releases?
  3. Lucibee

    Correspondence from the DWP for 2004

    There's not much of anything in there - mostly just admin and procedural stuff (and a hefty pinch of arrogance). Unless someone has spotted something I haven't. [Update: I've put screenshots of the pdfs into a single Word file if that would be useful to anyone. If it would be useful to produce...
  4. Lucibee

    Correspondence from the DWP for 2004

    Summary of Correspondence to DWP about PACE trial in 2004 1. 13 Feb 2004 – Anne Faulkner (CFS Research Foundation) to Mansel Aylward AF updates MA about CFSRF research progress. 2. 3 Mar 2004 – Peter White to TSG Subject: PACE TSC first meeting Making arrangements for first TSC meeting. 3...
  5. Lucibee

    Correspondence from the DWP for 2004

    OK. I'm slowly working through these, but on the way, this article was referenced... https://www.independent.co.uk/life-style/health-and-families/health-news/why-wont-they-believe-hes-ill-59669.html
  6. Lucibee

    Correspondence from the DWP for 2004

    Do these still need abstracting?
  7. Lucibee

    Correspondence from the DWP for 2004

    Is Carol Monaghan MP aware of these?
  8. Lucibee

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Exactly my feeling! Assigning a number scale to it somehow, magically, legitimises it. That statisticians (and others) rarely seem to look beyond the numbers has always baffled me. It has to make sense if it is to be of any use.
  9. Lucibee

    BBC video, 'when mental health gets physical'

    The issue of "recovery" is a thorny one, and it is no less thorny in mental health as it is in any chronic condition. This blog by Recovery in the Bin outlines it quite succinctly, although I think it goes a lot deeper than just a problem with neoliberal ideology. The concept of recovery comes...
  10. Lucibee

    BBC video, 'when mental health gets physical'

    "Recovery" in this context means "learning to live with your symptoms". I just wish they would be more honest about that, because for some, that is a valid aim, particularly in the absence of anything else that might work.
  11. Lucibee

    BBC video, 'when mental health gets physical'

    Prof Helen Payne Well this is all very familiar. I'm going through something similar myself at the mo (not ME/CFS related). I was particularly struck by the "It's just puberty!" thing, because I'm pretty sure it *is* hormonal (I'm at the other end), at least partly. And I hadn't recognised it...
  12. Lucibee

    PACE trial data

    Stata is a really nice stats package, although it's about 15 years since I used it in anger (as it were). If it would be useful to any of you, I would certainly consider getting hold of the latest version and re-familiarising myself with it.
  13. Lucibee

    Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund

    I trained as a statistician, and I can use Stata. Just saying.
  14. Lucibee

    Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund

    But don't we already know this? Didn't they have a laptop stolen from an unlocked office that contained recordings of patients' interviews? Or was that something else?
  15. Lucibee

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    It seems that some psychologists seem to be remarkably bad at paying attention to advances in their own field. I'm currently reading Daniel Kahneman's Thinking, Fast & Slow - and so many times I've thought, "why isn't anyone applying this?". One example is the difference between the...
  16. Lucibee

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Oh I think it can. Take a look... (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1739950/pdf/v057p00353.pdf) and they can't even get the wording right in the instructions of how to fill the damn thing in! The more questions you add, the more subtopics you cover, the more imprecise your 'scale'...
  17. Lucibee

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    It was used as the *primary outcome* in the iCBT trial published a couple of days ago. :banghead:
  18. Lucibee

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Like I felt reading this paper just now... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1739950/pdf/v057p00353.pdf
  19. Lucibee

    Lancet Infectious Diseases: Editorial, "A proper place for retraction", 2017, mentions PACE in passing

    I have only just noticed that Cochrane have substantially revised their conclusions on the HCV DAA review that was the main point of the editorial. Hey ho! Although it seems that the HCV community are still unhappy:
  20. Lucibee

    Lancet Infectious Diseases: Editorial, "A proper place for retraction", 2017, mentions PACE in passing

    OK. This is what I really think: Retraction (and/or correction) will only happen if both the authors and journal agree it should happen. That is unlikely to happen with PACE because neither groups have the will to do so. The only other way is if a bigger, better study is done that shows that...
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