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Cope alumni... https://publicationethics.org/about/cope-alumni

As @Nasim Marie Jafry correctly points out, incidence and prevalence are not static. It's therefore important to state when (and where) the data were collected and analysed. I suspect also that there is a lot of extrapolation from small datasets. Just because a number has been bandied about...

Had a scoot around at some of your other work @Hip - and came across this: Prozac inhibits enterovirus replication wow. (although unfortunately not replicated in EV-D68 in mice)

Cytopathic - kills cells Cytolytic - kills cells by rupturing the cell membrane [I wanted to say "with tiny swords" - but that's not strictly accurate]

I now have a copy of Ciba Foundation Symposium 173 for a short while...

I'll fix the link so it's more obvious (and also to add the pubmed link which includes further links to commentary). :) btw - Just found another one - White's had a go - Views on the nature of CFS

Interesting you should say this. I found this article by Wessely and a student of his in BMJ from 1994 saying it's all the media's fault - Professional and popular views of CFS [pdf]. I guess that's what prompted them to want to try to control the media via the SMC...

Un-%^&*-believable! Note that they never say, "we are not saying that it is 'all in the mind'" as they have more recently tried to say - although usually in the context of rejecting cartesian dualism. He does however say, But dotted throughout this chapter and others (I'll try to track them...

While we're on Wessely's chapter, I'll note down a few things that stood out (sorry, this is a bit long!). First was the link with depression/mood disorder: There are lots of assumptions in there. The next bit was on blame (my explanations, taken from preceding paragraph, in square brackets)...

I think it's the "invariably and permanently" bit he is objecting to here. But one of those sources is his own. See this figure on the VERY NEXT PAGE: What does fatigue lead to?

Interesting to contrast the different approach to setbacks. Smith points out that "a continued high activity level can produce an exacerbation. The patient then feels that further exercise is impossible and this would probably result in their return to total rest and even bed from which the...

I'd check with @JenB ...

That's why I've never understood why they haven't got behind pacing as a management strategy. It seems like the most obvious solution. Unless they did originally, and found that it didn't cure people, so assumed that they were booming and busting in secret?

I don't think that's fair. Alcohol avoidance because of exacerbation of symptoms had been noted long before they got involved. It's more likely that they are trying to spin a patient personality thing - the A-type, perfectionist, neurotic, teetotaller. The only problem is that they have never...

But was this a change to the management of the trial, or simply to the ways they intended to analyse it? The removal of those two measures and the change to CFQ didn't require any change to be made to any data that was collected from patients, so may not constitute a material change in the...

OK. So, in summary, we have Sharpe's study in BMJ (1992) which claims to show an association between support groups and poor outcome: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1883193/ (with alternative explanations presented in correspondence by others) ...which in turn references Wessely's...

I've seen papers where researchers have misquoted THEIR OWN PAPER! And it's then been used as evidence in NICE guidance. :arghh:

I've checked out reference 16 (Wilson et al) - which is this one: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2539669/ - and it makes no mention of "membership of an ME group" being a predictor of poor outcome - in fact, they didn't seem to measure it at all. So yet another misquoted reference...

Their usual response to that tactic is to say, "Why are you so obsessed with something I said 30 years ago?" It is relevant to the subject of this thread, because they will always find a way not to say it themselves, but to let others say it for them (whatever the "it" is).

How will that help?