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  1. Tilly

    Multidisciplinary rehabilitation treatment is not effective for ME/CFS: A review of the FatiGo trial, 2018, Vink & Vink-Niese

    The person sitting on the panel to help the laypeople to understand research and the process is Professor Tony Kendrick. Most on the panel seem to be mental health researchers and providers. Nigel Beasly is an ENT, is a clinical lead in cancer Nottingham Uni Hospital and deals with clinical...
  2. Tilly

    Event: BACCH: "Navigating the minefield: MUS and FII", 7th Dec. 2018

    What astounds me is that there hundreds of cases of false allegations; you only have to look at Tymes Trust so where is the balance? Parker is on the GMC as a trainer. How convenient that is and then you have a master plan of Safeguarding at school geared around MUS and is why they use pervasive...
  3. Tilly

    Dr Myhill’s complaint to GMC about PACE authors.

    I also got a negative but I have a question does anyone know who educates the medical profession with regards to ME. I know M Sharp wrote a book for Occupational Health and I know the Choices are educators and SW has something to do with that. I need info on how this all this works. Any ideas
  4. Tilly

    Wessley

    It is not only toxic gas, it is also the amount of bumps to the head that no one ever thinks about. We are only just beginning to understand that bruising and small bleeds to the brain damages the way we think and act imagine how it must have been getting bombed out. What do the old footballs...
  5. Tilly

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Is this the same chap that is part of this http://www.fndaction.org.uk/what-is-fnd/ It seems they are trying to get Neurological Functional Disorder (FND) part of NICE asked for by the NHS that seems to be going through a scoping at the moment...
  6. Tilly

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    Thank you for the warm welcome's and good to meet you all. I have now managed to put an introduction on. I don't believe in "I am only a mum" and am always shocked when people assume this. But I am proud to be one and it makes me giggle when they assume, little do they know I think to myself. :)
  7. Tilly

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    I attended the NICE Engagement and I also brought up things like Vit B12, FII accusations, Bedbound not being take seriously or understood in any meaningful way, having no visits from medical staff; so therefore we have no real understanding of severe. We need a severity scale in order to...
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