Another interview in from Serbia. So similar to everywhere else in Europe. In many ways worse as ME is not even recognised as an illness there. Good to hear that there is a clued-up doctor over there and I know that their ME Association is pro-active within the European ME Alliance.
I'll be...
Thanks so much for this, really appreciate the kind words. I'm happy to be involved and helping in whatever small way I can.
Yes hopefully get that last £800 in to reach £50K. Will definitely try and find a way to celebrate that somehow!
Quick update from me
I'm training hard for my 31st country marathon for Invest In ME.
I'm running this year in Serbia (April 28) and Albania (Oct 20)
For Serbia, I'm going to be meeting Dijana and the ME Association there, hopefully with some media coverage to help raise the profile of ME...
I can see that ME/CFS Treffpunkt Österreich facebook group shared the petition on Sept 26th.
I don't think I know of the associations in Austria unfortunately.
Did you hear back from Gracemarie or Nicole at Verein ME CFS Schweiz?
Hi all
Race report here:
http://www.mikeseumarathons.eu/other-euro-marathons.html?fbclid=IwAR137iMkz-GQDxrYGOSns4CDsQ8hYefPQ4pswjiuGC2tr5PDP1N-gLB-lFE
You'll need to scroll to the bottom, Apologies the website has got a bit messy.
Very happy with the trip. Raised £1400 so far from it for...
Fly out to Zurich next Friday to run Lucerne/Swiss City Marathon for people with ME there.
I've managed to interview 1 ME patient there so far. Trying to reach some media but it's proving tough so I'm not sure how much good I'm doing really but I'll give the race everything I've got...
Thanks for the q.
I pick a race/country generally. But on occasion if enough people want me to come then I try and get there!
My rough plan at the moment is to keep on trying to get to new countries but I'll soon run out in Europe so am looking at races that maybe look a bit unusual (and not...
I'm going to be meeting with Nicole Spillmann from ME CFS Verein Schweiz in Lucerne on race day (Oct 29th). Gracemarie and Nicole are helping me to find Swiss ME patients to interview and then we'll approach local media there to see if we can raise awareness.
They've also very kindly offered...
Thanks for the nudge, oddly I've just shared it on facebook and then come on here. Will share on Twitter/X shortly, though I don't use it much anymore (Elon Musk etc)
Thanks Ash, that means a lot to read that.
It's very frustrating that ME attracts so few 'well people' who want to fundraise for research. I also can't help but feel that I would have raised more like £100K and not £50K had the illness been more understood and prominent in the public...
Nice little blog interview here (sorry I know you've heard it all before many times!)
https://encephalogirl.substack.com/p/an-ally-for-the-long-run-literally
hi all
Here's my race report and pic trips for Bergen Marathon (Norway, country 29!)
http://www.mikeseumarathons.eu/other-euro-marathons.html
Scroll to the bottom!
£900 raised from this race and an amazing lunch with Profs Mella and Fluge who have a new trial on the go!
Next up is...
Quick podcast/interview with the Norwegian ME Association:
https://www.me-foreningen.no/2023/04/22/mike-harley-gjester-me-foreningens-podcast/
I'm flying out on Thursday and hoping to meet some scientists and patients before the race on Saturday.
Thanks for posting!
I think you can hear the podcast here:
https://open.spotify.com/episode/2gvNDt7ffd41gp5H28FuIb?si=dc8906e1a82a4d1a
And
https://www.podbean.com/ew/pb-ghb4z-13c0231
Hi all
Quick mini-update from me.
I'm being interviewed for a couple of podcasts ahead of my trip to Norway to run Bergen Marathon (Apr 29).
Norwegian ME Association - recording Tues 7th march - will let you know when out
Running Tales - will be out on March 21st - big running community...
hi all, and happy new year.
Am still going! Closing in on £47K, hoping to get to £50K soon.
Off to Bergen/Norway to run on April 29th and hoping to meet or interview some ME peeps over there (and maybe meet some scientists/researchers at Haukeland)
I put an appeal out to see if anyone wanted...
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