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  1. Sly Saint

    Who is Simon Wessely?

    Where do you start? :laugh: Unless that was a sarcastic question, you have a lot of catching up to do. suggest you start here https://me-pedia.org/wiki/Simon_Wessely then maybe do a search here on his name.
  2. Sly Saint

    Action for M.E.'s big survey, 2019

    [these threads might be of interest] https://www.s4me.info/threads/why-are-the-majority-of-pwme-rarely-mentioned.7732/ several scales (including hummingbird where cognitive and physical are split) on this thread https://www.s4me.info/posts/106919/ I think one of the big problems with all these...
  3. Sly Saint

    An ME patient goes on a virtual pilgrimage Ruth Lampard Church Times May 2019

    posting this here as @RuthT might know people who may be interested Oct10 Minstry and ME/Chronic Fatigue Syndrome by Diocese of York https://www.eventbrite.co.uk/e/minstry-and-mechronic-fatigue-syndrome-tickets-61286233775
  4. Sly Saint

    Civil Service blog - Personal Disability Stories - Kays story (ME sufferer)

    https://civilservice.blog.gov.uk/2019/05/03/personal-disability-stories-10-kays-story/
  5. Sly Saint

    ‘Winter Hill’ Film Premiere in ME Awareness Week May 2019

    from MEA website https://www.meassociation.org.uk/2019/05/me-awareness-winter-hill-film-premiere-in-me-awareness-week-03-may-2019/ on youtube
  6. Sly Saint

    Action for M.E.'s big survey, 2019

    I don't fit any of those descriptions. They are far too specific and that they describe what people at each level should be able to do is not helpful. As you say, what is the evidence for this?
  7. Sly Saint

    Prevalence of post-concussion-like symptoms in the general population in Italy, The Netherlands and the United Kingdom, 2019, Voormolen et al

    I note that some 'emotional/behavioural symptoms' have been included. This is taking the description of concussion in a different direction which is not what (as I understand it) neurologists would test/be looking for. see my post here from a while ago...
  8. Sly Saint

    Podcasts - ME/CFS Ireland

    Lifeline 01/05/19 Interview with Yvonne Brewer Spillane Samir Oucherfi May 1, 2019 near fm podcast Liam is joined by Yvonne Brewer Spillane who talks about what it’s like to have a son who suffers with ME/CFS ( Myalgic Encephalopathy/ Chronic Fatigue Syndrome ). Duration: 23:02...
  9. Sly Saint

    ME is not a functional disorder: ME Association 13,000+ petition sent to NICE

    from a brief bit of googling it [concussion] is taken seriously by neurologists who will perform a number of tests for diagnosis............. (interestingly the treatment is rest). But if it doesn't resolve, it then becomes 'post-concussion syndrome'.....and it's on to the psychs...
  10. Sly Saint

    ME is not a functional disorder: ME Association 13,000+ petition sent to NICE

    I think again that the problem is with how the 'cognitive problems' are described/interpreted. More often than not they are confused with 'mental problems' (the benefits questionnaire for ESA for example has cognitive problems in the 'mental' section and tend to be largely directed at feelings...
  11. Sly Saint

    Action for M.E.'s big survey, 2019

    The survey done in 2014 https://www.actionforme.org.uk/uploads/pdfs/me-time-to-deliver-survey-report.pdf based on the results of that survey that worked well. maybe sort out existing problems first?
  12. Sly Saint

    Social Services Can Threaten Families of Children with Chronic Fatigue

    hmm, and who consistently backed up the claims of 'effective treatments' and helped promote them(?)
  13. Sly Saint

    Physio-pedia

    physio-pedia pretty awful entry under chronic fatigue syndrome. the good news is it says that it is currently under review. https://www.physio-pedia.com/Chronic_Fatigue_Syndrome
  14. Sly Saint

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    He and the others keep changing their tune to try and save face. There are many instances where SW has more than inferred that ME doesn't exist, and one of the prime reasons for 'changing the name' to CFS was to 'reclassify' it as a mental illness. I am reminded of Nigel Speights comments in...
  15. Sly Saint

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    It's funny that KK also made a 'thing' of David not being a medical doctor....... so what medical qualifications or for that matter, journalistic qualifications does she hold? (I can only find that she has a BA in Russian and German [on Linkedin]).
  16. Sly Saint

    Who to contact to get an FMT clinical trial with high quality donors? Poor donor quality is likely what's keeping this from being an available cure

    maybe you should try finding some 7th Day adventists? https://theplaidzebra.com/why-seventh-day-adventists-live-longer-than-any-other-group-in-america/
  17. Sly Saint

    Rogue company Unum’s profiteering hand in the government’s work, health and disability green paper (2016) (ME mentioned)

    [for cross-referencing purposes] see also this thread https://www.s4me.info/threads/government-and-insurance-companies-establishing-the-bps-model.2319/
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