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yes, I was just thinking the same about the interferon alpha research (only involvement of ME/CFS patients was as controls, not sure if they were matched up there either). From what I read somewhere(it might have been on one of his videos, interview with Ben(?)), I think Ron Davis was putting...

It also sites the Cochrane review as a 'seal of approval' for PACE; a lot hinges on Cochrane so whatever they decide in May is crucial. Would be good to have a 'joined up' response ready from all advocates for whichever way it goes. [ ie @dave30th @Brian Hughes @Carolyn Wilshire @Tom Kindlon...

"at least 11 studies have cited this letter, which appeared to have nothing to do with any of them." a literal 'carte blanche' for Crawley.

I wouldn't mind if a certain UK charity did the same.:speechless:

The Impossible Dream Opera singer and neuroimmune disease sufferer Jacqueline Ko fights for disability visibility with The Impossible Dream, a benefit show for the ME/FM Society of BC Saturday, May 18th [I like that they refer to ME and then say - 'sometimes referred to as CFS'...... it's...