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now on youtube:

I am not/was not mild but I think the biggest thing I have repeatedly tried to get people to understand about the illness is that after 'over exertion' I don't just feel tired, I feel very ill. The way that PEM seems to be often interchanged or confused with post exertional fatigue, (along with...

maybe look at how the MS Community do it(?) I see that they joined forces with the Parkinsons UK for the tissue bank. https://www.mssociety.org.uk/research/explore-our-research/research-we-fund/search-our-research-projects/ms-society-tissue-bank

according to their website you can buy one online for £599 from UK. Can't see any restriction re prescription. eta: you can also rent one for £39.99 pm

https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(19)32766-7/fulltext

there was another one proposed, discussed a few years ago at the other place. The Nightingale,Myalgic Encephalomyelitis (M.E.)Definition Given recent events with Dr Hyde, all of his work seems to have been largely dismissed. But there are a number of things in this definition/diagnostic...

yes 07/Q2006/48

Exercise Physiology & Research NSU Institute for Neuro-Immune Medicine The role Exercise Physiology plays in conducting research studies related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, ME/CFS, and Gulf War illness, GWI.

Missed this but the programs are still available. full details here http://www.cbtwatch.com/radio-4-and-5-live-put-iapt-under-the-microscope/ eta: https://www.bbc.co.uk/sounds/play/m000b5wh (Nicky Campbell) starts around 07.15 https://www.bbc.co.uk/sounds/play/m000b5wk (Emma Barnett) starts...

https://journals.plos.org/plosone/article?id=10.1371%2Fjournal.pone.0224833&utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+plosone%2FPLoSONE+%28PLOS+ONE+-+New+Articles%29

Trish Greenhalgh is professor of primary care health sciences at the University of Oxford. https://blogs.bmj.com/bmj/2019/11/12/trisha-greenhalgh-towards-an-institute-for-patient-led-research/ see also this thread...

https://acrabstracts.org/abstract/when-will-i-get-past-this-exhaustion-predictors-of-improved-fatigue-in-the-first-year-of-ra/

NICE guidelines

David Oliver: Sepsis—what’s behind the “hype”? bmj article: https://www.bmj.com/content/367/bmj.l6327 lancet article: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(19)32483-3/fulltext#%20

http://www.virology.ws/2019/11/07/viruses-that-jump-around/

Researchers discover potential therapeutic approach to treat ME / CFS Publicly released: Mon 11 Nov 2019 at 1630 AEDT | 1830 NZDT https://www.scimex.org/newsfeed/researchers-discover-potential-therapeutic-approach-to-treat-me-cfs

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:

https://www.eventbrite.co.uk/e/dinner-comedy-drag-queen-novelty-man-auction-baby-d-party-tickets-69705736735

Merged - 2019 UK Election "Carol has also led the campaign in the UK Parliament to change attitudes towards Myalgic Encephalomyelitis (ME), leading three landmark debates on the research and treatment on the condition and on the controversial PACE trial."