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You'd think the moral and rational conclusion of someone who cares enough to write as vehemently as the author did would be that there should be more investment in good clinical centres and research into these diseases to ensure that better tests are developed. Maybe I'm wrong but when I read...

Erm given the first correlation that they saw was that there was a strong correlation between those who had severe post-concussion symtpoms and their claimed 'FND score' then aren't all of the inferences they have made in their conclusion actually about the real construct of post-concussion...

This is really poor on stress too, as it is relevant. I don't know why I'm surprised but they've just done a few lines saying 'sometimes increased stress can reduce fatigue' but then descend only into their cliched narrow definition of it. Even in the consumer behaviour literature they are...

TO me the generic phrase 'mental' fatigue rather than cognitive or other more specific terms (including sensory effects) is an indicator of this being another rabbit hole (and the usual mixing up the migrainey almost inability to see from sensory bombardment/overdoing it with 'brain fog' or 'not...

If they exclude 'the one who had fibro and PEM symptoms before covid' then they are talking about 6 with PEM out of only 16 over 70yr olds referred to the service That is still around 30%, and then there is the question of the level of severity because there is a chance that age group has more...

I think having articles that back this up makes a huge difference. It is hard to describe a whole world to people. And the information on energy-limiting is so poor. I do like the video-game idea where for example you have an alarm going off which is draining your egg-timer, but you'd have to...

Actually I think that patients historically not having told or corrected people they know has been a major issue in the predatory awful stuff I've had thrown at me. I believe that for those who are most targeted by the awful culture and people who mightn't think of themselves as predatory...

I'm sorry but I can't help but assume there is a lot of 'priming and seeking out phrases and leading horses to water' involved with claims of 'all-or-nothing behaviour', particularly when it is being used by certain people as an explanation for why someone has worse x than others. I highly...

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I think that (and it is obvious from looking at some of the fb groups and so many having to write posts anonymously, and I understand why they do) lots of people with ME/CFS have to hide it. Or certainly don't make it public beyond those who either need to know or are trusted. If it isn't their...

https://www.thetimes.co.uk/article/finally-time-reform-outdated-mental-health-act-hvzbzpchs It’s finally time to reform an outdated Mental Health Act Thought I'd add the link here wimpishly before I have read it myself. I'm doubting it is specific to ME/CFS as title says it is about the mental...

agree on the interesting point of seeing if there are issues that are ‘across the board/generalised’ and also vice Verda it is useful to point out where strange things in process have been ‘particular to’ ME/CFS by comparing similar enough areas. It might in that context allows for arguments...

Agree with the past ‘approach’ of CFS being literally used as a place to dump people with no investigations in order that they don’t have to do any investigations is a big issue. one outcome of this (along with the issue on recovery stats and people who maybe didn’t have it claiming their...

I also wonder whether there is also the issue that not enough good messaging getting through about how bad it can get and the different connections between milder and those more severe states ie lots of people when more mild made to feel ‘but there are other illnesses that are much more serious’...

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PS I love how the same people then cite the biopsychoscial model saying they are being 'holistic' when they can't even see so far as too treat someone's health problems as a cumulative health instead of imagining what you'd do if you had some imaginary disease where you just needed to increase...

Oh the old reframing because you can't deal with reality trap. Exercise isn't a drug, and so the whole 'dosage' stuff is nonsense, much as they'd like to use it as crappy marketing spiel. And it's even more crappy given that drugs and dosages have damned more strict licensing and regulations...

Or were these given intravenously? I can't tell any of this from the abstract but it feels the only way it could have been blinded or done as a placebo. morphine is sour as heck and not in pill form. I don't know what form naloxone or the placebo they used was but I though naloxone (admittedly...

More like the time-difference accounts for the placebos in the middle being the group where anything varied. Some of whom the initial anesthesia had worn off already, others who hadn't at 3hrs? "Patients given naloxone [at 3hrs, the first time point] reported significantly greater pain than...

He gets a few things right in his last para. "The study of weakness and fatigue leads to a consideration of medical problems covering nearly every area of medicine" and "IN any case these symptoms warrant thorough and complete investigation" But these sandwich the worrying part...