This is presumably all being done in response to the clamour from people with ME that what they wanted more than anything was an additional layer of unaccountable bureaucracy. Who exactly do you call if you want to speak to the new organisation?
Have we ever managed to discover to whom Afme is...
If you are trying to carve out for yourself a new career, it is inadvisable to share, too early, information which might put a stop to it.
Edited for punctuation.
Was it entirely coincidental that the person interviewed to support the claims was Colin Blakemore, who must be the person with the greatest experience of genuine harassment?
You clearly had not got the idea of graded exercise therapy at that early stage. You needed a smaller,lighter envelope. If necessary you should have sent half the letter the following day.
Thanks for the update. I suspect that we have all learned something from this sorry tale.
Reverting to the subject of Afme advocacy in Geneva, the question that will naturally arise is to what extent is Afme strategy independent of Forward-ME? Do these developments mean that Afme will be using...
What's all this? Someone says they have a list? I'm appalled. Appalled. It's a death threat, I tell you. These allusions that they all like. Much less obscure than GBS.
Gilbert and Sullivan. The Mikado. Ko-Ko, the Lord High Executioner.
Of society offenders who never would be missed, I've...
The question which clearly now arises is: What action could Forward-ME take to persuade the informed patient population that it was receiving and acting on best advice in this controversial issue.
I always find the lack of full stops in ME disconcerting.
From as long ago as 1922 in the shell shock report the terms "functional nerve disorder", "neurasthenia" and "neurosis" seem to have been used in such a way as to suggest that they were synonymous and interchangeable.
@DXrevisionwatch
I am sure you will not feel obliged to answer this query if you feel constrained on the matter.
Is the problem one of substance or of form? Is it about what has been said or written, or is it about how and where it appeared?
In either case one would have expected a more...
It would be interesting to know from whom Forward ME are taking advice, or proposing to take advice, on the complex issues of coding, now that they have dispensed with the services of their generally acknowledged expert. Do they have a plan?
Could it be that rather than seek a response to this new intervention the been is simply quoting the response on a previous occasion that some similar point was made. Does anyone recall what was the last occasion that a group of alleged experts issued such a statement?
There seems to be a problem with "a statement" from "some leading researchers". What could be the process by which the BBC obtains such a statement from a group acting in concert. Does anyone believe that they contacted one researcher who phoned his friends to agree this? I agree with those who...
I must have been confused. A touch of the sun. Sorry about that.
I am very sorry to see the way matters have unfolded, after all your work, on this subject which will be beyond the current reading endurance of most of us.
One understands that tensions and disagreements will always arise...
Was I hallucinating yesterday when I imagined I saw another thread on a related subject, but of which there is now no sign.
If the removal was at the request of the original poster, having had second thoughts, that would be absolutely fine. The only concern would be if there were some degree of...
@Bill
I wonder whether you have looked at Ramsay's definition of ME recently. It is possible that you are under a misapprehension.
He said that in less severe cases "muscle tenderness may not be so easily elicited but careful palpation of ....the muscle groups most commonly involved with the...
You would think that the original findings would have caused them to double and treble check the conclusions - unless they were more than happy with them.
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