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    Data/info request from Robert Phair for Relapse/Remit people

    I always thought that was a crucial question and would be happy to answer it. But I'm not returning to the other place to do so.
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    MUS services in UK and other MUS related issues

    It just goes to show that it is really all about the dysfunctional doctor/patient relationship. This may be why Wessely never again mentioned Pilowsky's Abnormal Illness Behaviour in the context of ME. It was destined to re-emerge as MUS.
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    When symptoms are a mystery - American Psychological Association article that quotes Sharpe. (2013.)

    It isn't surprising that we are confused if people capable of constructing such poorly thought out sentences are in charge. How many categories is he suggesting. Are "real" and "imaginary or blameworthy" separate classifications or merely descriptive of "physical" and "mental" respectively? Is...
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    Carol Monaghan asks question of Prime Minister in PM’s questions today 27th March

    If the SENCO behaves in that manner does one not have the right to take the matter first to the Headteacher, and failing that, to the responsible Governor.
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    Who said: don't bother testing patients?

    The pattern of presenting symptoms also has consequences for the recognition of illness and subsequent referral patterns. Patients suffering from depression with primarily somatic features are more likely to be referred to physicians whereas those with mainly traditional psychological features...
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    The actual views of "ME activists" are...

    I'm not sure there is much risk of anyone's views appearing in print. There is however a very real risk that sentences selected at random from what is written might appear with a poster's name associated with it.
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    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    Dreadful state of affair when members of the general public are fed a story about chronic fatigue and fail to understand that it was never about chronic fatigue syndrome. How can doctor/journalists be protected from such ignorance?
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    The i newspaper: CFS how online abuse is halting research

    Jeremy Laurance, Health Editor, The Independent, said: “It is not your contacts that impress - or not only - but your ability to get responses out of them in short order. Brilliant." acmedsci.ac.uk/file-download/37090-551d028c91645.pdf This was a May 2013 publicity puff for the SMC. Not sure...
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    The i newspaper: CFS how online abuse is halting research

    Don't worry about it. I find that things never look the same twice.
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    The i newspaper: CFS how online abuse is halting research

    That was in an early amendment published by Reuters which included the original correction about Columbia University, so it is not specific to the I article.
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    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    The stock answer to that is probably that the title is written by a sub-editor. We shall see.
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    The i newspaper: CFS how online abuse is halting research

    Interesting. So far as I can see the original article was amended to include a reference to @dave30th 's article being hosted by a Columbia University website. Reference to this seems to have disappeared. One would not want to give any impression of wider support. Where@s that Reuters' Handbook...
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    The i newspaper: CFS how online abuse is halting research

    Is it usual for the I to pick up stories two weeks late and a week after anyone else? Presumably this is a straight syndication, but it would be interesting to see whether it has incorporated amendments to the initial version. The i isn't on the usual list of SMC suspects, is it? Makes one...
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    Hole Ousia - it's Boom time! - Michael Sharpe

    The cynical part of me cannot help wondering whether Sherpa's "new-found" preference for cancer research might not have more to do with relative levels of funding than abuse and intimidation by ME patients.
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    Trial By Error: The CDC’s Pathetic Response to Reuters

    And why not criticise a model that includes statements such as : Furthermore there is some evidence to support the suggestion that patients who attribute incapacity and failure to physical disease rather than to their own shortcomings are able to maintain a more positive self view. Sharpe...
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    ME charities' response to the Reuters article

    That was always why simply trying to counter with the science was never going to be sufficient. The science has never mattered to them. But there is no need to hurry over a powerful response. One can see potential benefits in delaying it, so that when the Cochrane developments become known...
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    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    One might reasonably have expected that to run an NHS service in any condition it would be a sine qua non to have a clinical interest in the subject. The uses of the word "interest" are clearly various and uncertain, and the ways of the NHS even more so.
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    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    It is surprising that Hertfordshire's clinical lead for CFS/ME does not list it as one of his clinical interests. www.spirehealthcare.com/consultant-profiles/dr-colin-johnston-c2383859/
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    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    I guess that that is to be interpreted in the same way as "courageous" in Yes Minister.
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    Study evaluating NICE, Oxford, and Fukuda prevalence

    I have never before heard her referred to as the missing link.
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