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When I had the test done I had to stand for 30 minutes.

White Rock is in my part of the world. For the most part, when there are media reports about ME/CFS in Canada, they tend to be positive stories such as this one. Not the negative blame the patient, wrong thinking, deconditioned, blah blah blah, type stories that come out of the UK.

Toxoplasmosis and Cat Scratch Fever are two different things.

I've had cats pretty much all of my life and I've never had cat-scratch disease. And Lord knows I've been scratched many many times over the years.

I'm not bed bound but I did try using it many years ago to see if it would make any difference to my ME/CFS symptoms. Unfortunately, other than cost me money it didn't do anything noticeable.

An inner ear infection?

I'm curious as to how you know that 'low quality donors' are being used??

@Dechi Could you possibly need a new mattress for your bed? I started getting hip pain while sleeping which turned out to be a mattress issue. Since I bought my new mattress I haven't had this problem anymore.

My main symptom of ME/CFS is fatigue in the form of extreme exhaustion. It has been like this from day one. It most definitely is not 'relatively minor'.

My ME/CFS started three days after taking oral penicillin for two badly infected teeth.

I was tested in January and they were 'normal'.

I'm the only person I know that had mono who later went on to develop ME/CFS. And that was 14 years later.

I'm curious to know how many other people with ME/CFS have tested positive for Sjogren's syndrome. I was recently tested and came up positive for SS-A, however, I don't have the classic symptoms (dry eyes and dry mouth). I haven't seen the Rheumatologist yet, but according to my Internist...

I have tried the B12 injections and d-ribose. As far as prescription drugs I have not yet met a doctor who will prescribe random drugs simply because I have ME/CFS. Neither would I be willing to try them without proof that they work for our condition. Many years ago before ME/CFS, I was put on...

It makes me wonder if this is something that I can do here in Canada. I'll have to check into it.

No. Being physically active for too long causes my PEM. Indoors or outside. Any time of the year.

Nope! Not a one. I have not found a single drug or supplement that has helped in any way regarding my ME/CFS.

Wasn't Penny a moderator for Dr Marshall's forum? Or was she also involved with CFSExperimental? When I was a member of the later group I believe it was Ken Lassesen who was the administrator.

I owned that book many years ago but have long since gotten rid of it.

I think it was Dr Bell who originally stated back in the 1990s that if someone didn't recover in the first five years then chances were that they wouldn't.