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  1. Kitty

    Research news from Bhupesh Prusty

    I've been thinking much the same, it must be difficult to get attention when you're researching such a marginal disease. He seems to be in a far from ideal situation as regards funding and support, and some of this is presumably targeted at potential funders and/or hosts for his lab. I don't...
  2. Kitty

    Research news from Bhupesh Prusty

    Looking forward to reading the paper. It'd be great if they really have found something.
  3. Kitty

    United Kingdom: BT Home Essentials broadband for people on specific benefits

    Oh yes, same. They're such a bloody awkward shape, specially if you were clumsy to start with and now your fingers don't even have working joints. I've all on putting the passcode in when it decides it's gone off my fingerprint, let alone doing anything more intricate. That's one of the...
  4. Kitty

    United Kingdom: BT Home Essentials broadband for people on specific benefits

    Making a WhatsApp call to NZ would be no different to making the call on a mobile, though. You just press a different square on the screen. If someone else had dialled up the call and then handed the phone to me, I wouldn't be able to tell you which I was using. The only reason I might choose...
  5. Kitty

    Reduced MC4R signaling alters nociceptive thresholds associated with red hair, 2021, Robinson et al

    Henna'ed mice! :rofl: ETA: I now have visions of them wrapped in tinfoil, like a woman I house-shared with in the 70s.
  6. Kitty

    Principia Scientific International (PSI) website

    :rofl: I wish I had your restraint!
  7. Kitty

    Research news from Bhupesh Prusty

    Is it me, or are parts of that list from Prof Iwasaki a bit underwhelming? Would it be very surprising if 94% of patients who said they were ill turned out to be ill, or if immunisation increased antibody responses, or if herpesviruses reactivated during illness, or if no increased...
  8. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    The whole thing's barking. For a start, I bet there are a good many people who would qualify for PIP on a fair assessment but don't currently get it, either because they can't face the application process or they didn't have support to appeal when an initial application was turned down. This is...
  9. Kitty

    Sex and gender differences in primary care help-seeking for common somatic symptoms: a longitudinal study 2023 Ballering, Rosmalen et al

    Why are these people so unembarrassed about doing exercises set to caution undergraduates about using terminology without considering whether they understand it, and actually publishing them? Perhaps it's just that I haven't been to university and assume the standards are higher than they...
  10. Kitty

    Lost Time

    It's probably normal, though, for memory to "lose" spans of time that passed without much physical or emotional stimulation and when the brain was in a fatigued state? The period would be very hard to remember anyway, and a memory of it would have no purpose. The phenomenon of coming-to halfway...
  11. Kitty

    First time finding a carer

    When we were calculating these for a relative, we had to evidence them. Purely by luck one of us subscribed to Amazon Prime, so there was a ready-made record of the bits equipment that had been ordered and a clear indication that new stuff was being needed all the time. There were also the...
  12. Kitty

    Endometriosis and ME/CFS

    It might be difficult to unpick even if the right questions had been asked in population studies, especially with cohorts that included older women. They were even less likely to get an endometriosis diagnosis than women are now, and it's quite hard enough. All of the older women in my family...
  13. Kitty

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    Yes, with banking I often have to use two-factor authentication as well, but that's mainly because I don't use banking apps. Most of the 3rd party stuff on my phone is for use only when I don't have access to a laptop: wildlife surveys, maps and GPS, parking, taxis, etc. None of them need a...
  14. Kitty

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    As @Wonko says, you don't need to remember the smartphone's number to use apps. You give the organisation the number of whatever phone you want to use for calls, and whichever email address you prefer. (If you ever lost the number of the smartphone there is a way to find it out, and you don't...
  15. Kitty

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    Some apps do require a number, but it doesn't have to be the number of that device—just enter the number of the phone that you use for calls. I can't remember what it was now, but I once had to install an app temporarily for work where I didn't feel I should have to disclose my phone number, so...
  16. Kitty

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    @JemPD, can you use the apps on a smartphone okay? It's really the texting that's the problem? If so, maybe having both types of phone is the least worst option. You could stick a cheap pay-as-you-go SIM in a smartphone so that it will work, set the phone up with your home wifi password, enable...
  17. Kitty

    How do long COVID patients perceive their current life situation and occupational perspective? ... 2023 Schmachtenberg et al

    I guess they probably would. Those diseases can also affect every social aspect of people's lives (career, education, family, recreation, etc), but also in the more limited sense of social: relationships, friendships, hobbies, sport, informal learning, arts and crafts, volunteering, practising a...
  18. Kitty

    Endoscopy - sedation ?

    They are, I had a full colonoscopy without sedation for the same reason: I don't want to have to have a friend with me for 24 hours afterwards, because it would be completely exhausting for me and a right pain in the backside for the friend, who'd have to give up a day's work. As you say, the...
  19. Kitty

    Lost Time

    I'd forgotten about this—yes, it's another phenomenon. For me it's different to the more routine loss of time due to being in standby mode during rest, because that's not speeded up in the same way as it is in severe PEM.
  20. Kitty

    Lost Time

    I lose time too, but it's always featureless time. I might be unaware of whether I've made toilet visits, but I don't fail to recall things that require more physical or cognitive effort. If it's this loss of 'empty' time, I just call it going into standby mode. I suspect it's not uncommon in...
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