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I think a public apology that specifies what they got wrong and what they think should happen next from someone so prominent in the world of medical research and care is important as an example to others who should also consider whether they have been and maybe still are getting it wrong about...

I have just listened. Thank you @dave30th and thanks to Ed Yong. One thing that stood out for me was the interesting balance between the research and journalism that David has done on ME/CFS mainly focused on the false psychogenic model and bad research and its impact on patients. David has...

Perhaps a reflection of who is on Twitter/X these days, with those supporting misinformation dominating.

In a long list of comorbid conditions out of 53 patients: Severe chronic fatigue/CFS 15% (8)

Some recent posts have been moved to: News from the USA Crowdfunded awareness campaigns including billboards Covid-19 vaccines and vaccinations United Kingdom news USA Centers for Disease Control (CDC) news

Moderator note This thread is now closed. Moderators have decided to try a different approach with Long Covid media and social media. We are closing this thread and not starting a new one for 2024. Instead Long Covid media and social media will follow a similar practice to ME/CFS media and...

I think I answered that in the first part of the post you are quoting.

Riga Stradins University is in Latvia.

My preference is for the phrase PEM to be reserved for the delayed version that lasts several days and often much longer and really knocks me back so I'm unable to carry out my normal already much reduced functions. The more immediate increase in symptoms and reduction in ability to keep doing...

PEM is a significant worsening of symptoms and decrease in function following any exertion, not just exercise. Most of us with ME/CFS aren't able to 'exercise' as a separate activity in addition to what we need to do each day. So exertion can be anything that uses energy, including sitting...

The previous discussion is on a members only thread here. As was pointed out on that thread, as an undergraduate project it is probably acceptable to use 'off the shelf' questionnaires, since it's about learning how to collect data and analyse it, showing the student can go through the motions...

Posts about some other studies by the same researchers have been moved to new threads: Advancing Therapeutics for Post-Viral ME/CFS and SFN in Long COVID: A 20- Week Sensomotoric Training Intervention, 2023, Ziaja et al Comparing Fractional Anisotropy Diffusion Tensor Imaging of Patients with...

This looks to me at a brief glance through like a worthwhile approach to trying to tease out the relevance of a very complicated picture. I hope it leads to more work on collecting microRNA data and further analyses.

Week beginning 18th December 2023 Science for ME petition Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review The 18th December update to the petition reports that to date there is no reply to our letter sent a month ago to Cochrane's head of governance. "We asked Cochrane to...

Week beginning 2nd October 2023 Petition to Cochrane Withdraw the harmful 2019 Exercise therapy for CFS review The Science for ME petition that enables people to support Science for ME's open letters to Cochrane requesting immediate action on this review and its stalled replacement will remain...

Thank you for the New Year greetings Veronica, and I wish all the best for you in 2024. And thank you for sharing your poem. I love your use of imagery.

I hate the idea of voluntary groups of singers, walkers, gardeners etc being swamped with people who have no interest in doing the activity but are being forced to do it under threat of losing their financial support. I can imagine groups collapsing under the pressure. I agree, Kitty, it can...

My concern is that they will now turn the results the other way around and proclaim cost effectiveness for online activity management that includes incremental increases in activity, in other words GET. I remember saying at the start of this trial that they had set it up so whichever group did...

Lead Research Organisation: University of East Anglia Department Name: Literature, Drama and Creative Writing

What's that? I have left Twitter, so I haven't noticed an awful group, apart from the remission biome lot that seem to be imploding...