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Thread on a study mentioned in the article Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue..., 2023, Guo,Lipkin et al (not sure if this is the right one. They don't give names or references) Reduced diversity and altered...

Starts of OK in describing ME/CFS by distinguishing it from chronic fatigue, but then gets lots wrong too, not mentioning PEM by name and underplaying it as increased exhaustion. And then this:

This thread may be relevant: Recording of Dr James Baraniuk's May 17 webinar, "Nociplastic pain in ME/CFS and overlap with migraine and other disorders"

Definion from Google Nociplastic pain is the semantic term suggested by the international community of pain researchers to describe a third category of pain that is mechanistically distinct from nociceptive pain, which is caused by ongoing inflammation and damage of tissues, and neuropathic...

Newspaper headlines in at least 2 UK papers today say the drug slows development of dementia by 'up to 60%'. Surely that's misleading exaggeration, and presumably must have come from a press statement from the researchers or the drug company.

AI would have to get a whole lot cleverer than it is now if it's going to decide the BPS ideology is trash. I can't see how it will do that given the problems most humans have with seeing through it.

5

Blink and you miss it CBT. Subliminal CBT. CBT on an app that you play during sleep.

By googling, the nearest I could find was this: Lymphoedema compression therapy Compression therapy provides graduated, even pressure, which won't constrict your limb. It will be carefully chosen, with you, by your lymphoedema therapist. _____________ It also talks about compression garments to...

Completely agree, Hubris. If someone has a genuinely psychiatric illness, then psychiatry is the logical specialism, they are regarded as genuinely sick, and treatment is at least attempting to address their actual problem. ME/CFS is a different category altogether. It's regarded by psychs...

I think that's the key point. Psychosomatic illness isn't usually used to describle symptoms with a known traumatic origin, it's used for people who have no known past or present trauma who have symptoms without a current physiological explanation. Because the psychiatrists and psychologists...

I have glanced through some of the rest of the article. I think there is some good discussion of issues like patients' not being believed, and forced treatment of seriously ill pwME.

I'm only part way through reading this, but I got stuck at this paragraph on page 4. Crossposted. I agree with @InitialConditions.

Looks interesting. We don't appear to have a thread on it so I'll start one. Contesting the psychiatric framing of ME/CFS, 2017, Spandler and Allen

Contesting the psychiatric framing of ME/CFS Published version, paywalled https://link.springer.com/article/10.1057/s41285-017-0047-0 Full version: https://core.ac.uk/download/pdf/96679012.pdf Abstract ME/CFS is a medically contested illness and its understanding, framing and treatment has...

Without discussing the individual case, as I'm not qualified to suggest what treatment might be appropriate, I'd question calling it an 'illness'. Rather a symptom of psychological distress/trauma. I think of psychosomatic illness as a term used for diseases and syndromes like ME/CFS where I...

No good reason, but when does that stop them. CFS is redefined as all sorts of things. MUS, PPS, FII, FND, SSD, MUPS...

Not so odd if they think ME/CFS is a form of FND = Conversion disorder.

Such a beautiful and heartbreaking poem, @Veronica. Thank you for sharing it. On a lighter note, I tried some years ago experimenting with poetry forms. The sestina is incredibly difficult. I salute your achievement.