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No problem, @livinglighter. I find the whole FND thing so far outside my knowledge and experience that I generally steer clear of the FND threads. I understand it's a topic of interest here because ME/CFS is classed as FND by some people.

Sorry, I didn't make myself clear. I mean some of Stone's answers sound like he's trying to hang on to FND being psychological even if it turns out to involve neurological differences. I certainly wasn't arguing for a lack of appropriate care.

A lot of that sounds like making stuff up.

Not a recommendation https://living-from-inspiration.mykajabi.com/schedule-2023-holistic-healing-summit-for-long-covid-and-me-cfs 7 days of free online talks with speakers ranging from outright quacks to respectable researchers like Leonard Jason and Todd Davenport. The emphasis is clearly...

As far as I can see from the published paper I linked above, the only metal involved in the nanoneedle is gold.

Trying to make some sense of all this, rather than relying on my unreliable memory, I think it's worth going back to the paper they published which describes their theory of what happens: https://www.pnas.org/doi/10.1073/pnas.1901274116 Quote (breaks added for easier reading): Features of Assay...

What happens when you put healthy cells in an only slightly hypertonic solution? I have assumed this is what Ron's team did, and the healthy cells were more able to use the sodium pump to keep the cytoplasm at optimum concentration, whereas the ME cells struggled to do so quickly enough, perhaps...

I got the impression that the nanoneedle was originally being developed for a different purpose and testing it on ME cells was just an experiment, maybe suggested to the engineer by Ron. There may be something about who holds patents. That's a wild guess. That's why I like the suggestion on this...

I don't think it's necessarily true that it has failed. As I understand it's a mix of factors not to do with the results of tests. The engineer who designed it and made the prototype moving on to another job elsewhere, lack of funding from NIH, the pandemic putting a stop to all lab work for...

I don't know whether there is a difference between nutritionists and dieticians where you live. As I understand it in the UK, dieticians are the fully qualified and registered people who work with individual patients with a health problem that needs changes to diet, supplements etc...

From a Solve email: Dear Friends, By now you’ve heard directly from Oved Amitay regarding his need to step down as President and CEO of Solve M.E. over the coming months. While all of us at Solve regret ultimately losing his wisdom and collaborative spirit as our leader, we’re also excited to...

Perhaps we need to think more carefully about who the intended audience are for a documentary on this subject. I'm not sure whether it makes sense to make it for 'the general public' who are in a mood to be entertained, as most of the Netflix audience probably are. I would want the...

There should have been a no treatment control group. I have known children with quite strong phobias who grew out of them without needing any therapy.

I think we'll have to agree to disagree, @duncan. I don't want to take the thread further off topic.

Absolutely not. We base our comments on evidence. There's plenty of evidence in the public domain for all to see of the actions, writings and speeches of Sharpe, Wessely et al for us to base our comments on. We don't need to invent conspiracies.

Moderator note Please respect individuals' and their families' privacy by not speculating about the details of their health including diagnosis, treatment, symptoms, prognosis etc, or about other personal information.

That was a personal view, not a moderation team decision. If there is any moderation decision on what can and can't be discussed here, it will be labelled as a moderation message and in orange type. I apologise for not making that clear in my post. I'll amend it. If someone wants to say why...

There may even be documentaries being made including stuff about the wrong turning ME research took and the dominance of psychosomatic views and the way this is now impacting Long Covid research and treatment. LC organisations are certainly protesting about the NIH and others wanting to do...

I have read that brief debate. It is basically just a short speech from MP, Andrew Bridgen, who was thrown out of his political party for spreading misinformation about the pandemic and vaccines. He spouts a lot of nonsense he has presumably believed from conspiracy websites, and is disagreed...

I think the only way I would trust Netflix not to screw us over, however good our proposal, would be to actually make our own film then persuade Netflix to show it, as Jen Brea's Unrest eventually did. But that had to win awards and get noticed first.