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Alem. The guy deserves a Nobel prize for the contribution he has made which has had such an impact on him that makes it Herculean.

The group seems to have a diverse membership but attracting a fair few fairly recently diagnosed folk and people currently dealing with nhs clinics, folk asking about the usual suspect “treatments” and anything else that pops up on google. Dr H is pretty forceful in opposition to the NLP type...

Mike O’Brien hasn’t been in Parliament since he lost his seat in 2010 so luckily hasn’t been imparting his understanding of Lightning Process since then

Or maybe that helps some of them relate to it more easily.

These programmes seem to come in 57 varieties but all boil down to the same fundamental bullshit. Ignore your symptoms and tell yourself you’re better.

So from the linguistic side we've got @Dechi confirming that "une malaise" is feeling pretty seriously unwell and from the medical side @Jonathan Edwards confirming the same. Malaise isn't a word that's commonly used in UK English so it has that going against it in a way but then exertion...

I can't get my head around what HRV is telling me and what a normal one looks like any suggestions for (plain English) info on this?

I'm definitely not upgrading if they haven't got HR sorted yet

I’ve got an Oura ring. They are set up for healthy people would be good if they could do a version of their app that is ME adapted so you wouldn’t get the irrelevant comments. Also needs an upgrade to include heart rate monitor during the day not just the snapshot HRV score from your overnight...

Bristol must have simply taken Crawleys word that there's nothing in any of the complaints against her. Basic thing about investigating any complaint is to actually explore the issues before deciding to back someone. Otherwise you eventually have to back down and the longer it goes on the more...

The bit further down the blog about Holgate asking if now he's supporting Julia Newtons recent paper on reduced energy that means he's no longer supportive of FITNET is a belter.

on phoning up Unis to have a word didn't Keith Geraghty have the same thing happen to him

Good grief it’s just name dropping/creeping up/self aggrandisement wrapped up as some kind of “insightful”media/political analysis.Even creeping up to Gove. The SMCs younger selves would despise this. No wonder the BPS crew get on so well with the SMC it’s all bullsh*t

800 odd followers on both Twitter and Facebook so not a big reach on social media maybe more subscribers to the site

Anyone know if Manchester/Greater Manchester based ME groups/advocates are in contact with Andy Burnham. My impression is that he is someone who is open minded and prepared to overturn previously held lines/views. a previous health secretary albeit only for 11 months he has already...

Jo Cambridge signed quite early on too I hope if JC can’t make it because of some crisis that he will do a video and then maybe something like a visit to the Biobank that can be publicised. Hopefully he will bring the shadow Health secretary as well.

Isn't someone in Norway trialling faecal transplants??

Dunno about working well either for sleep or menopause. I think often people keep taking them cos they make a bit of a difference. Im working on getting something to replace Nortryptiline for sleep as the benefit is barely worth the negatives. Not heard of them being used for Menopause I was...

I think it's a good point to highlight though. A new guideline is much more positive than a rewrite.

I would imagine as Chair that the Countess has the final say