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I’m saving that picture it’s gold, thanks for bringing it up

As far as i know that drug is supposed to decrease inflammation through the microbiome. On ME-pedia it says atleast 2 different clinical trials have been started but none published, I wonder if they will be published in future or it was found to be ineffective. Given there are no published...

Was a little dissapointed seeing the ME Association’s tweet on the matter. A bit too neutral for an organisation supposed to protect patients in my opinion.

Yeah I’m not saying I endorse them. Just that that might explain why this renegade research seminar includes remission biome.

Can’t remember which but I think renegade research is “run by” remission biome, or the other way around.

Somewhat related question but if I’m very severe since 19 so basically not moving at all and on high dose PPI for life, I assume I’m quite at risk of developing ostheoperosis? If so, should I be taking a calcium supplement?

Maybe try a different browser/try removing add blocker? It did take some time to load for me and seemed a bit clunky. Worked on safari mobile for me though. @Binkie4

Oh fair enough. Should I keep this thread for those that don’t fit into regional news?

To start it off: https://www.onlymyhealth.com/tips-to-manage-chronic-fatigue-syndrome-in-middle-aged-women-1715946649 Chronic Fatigue Syndrome Affects Almost 10-15% Of Middle-Aged Women: Doctors Share Management Tips — Onlymyhealth in certain cases, fatigue may be severe and long-lasting...

I think it’s relevant to keep archiving and keep discussion/sharing news articles on ME which are very poorly written. The large majority of these don’t fit in another thread and aren’t worth making a new thread of their own.

Yeah. I made sure to complain about the fact the survey felt like it was desgined for people who were just mildly disabled from Long Covid ie. having questions assuming I could still do some types of exertion. I also made sure to complain about the fact PEM was not included. But I think it’s...

This really makes me think of Jarred Younger. Who said that by the end of the year with some studies he’s doing in Microgliya with very sensitive CT scan and MRI we would likely have definite proof of neuroinflammation. I guess we’ll see over the next year if that holds…

The Johns Hopkins Bloomberg School of Public Health is conducting research about how the COVID-19 pandemic has impacted people’s lives, especially around COVID-19 symptoms and recovery. they have a twitter account too...

Just completed this John Hopkins long covid study survey. I think it’s worth filling out if you can manage: https://covid-long.com/ should take 10-30 min.

neurobollocks would be a fabulous term for fnd

I’ll have to see how they age but I’m getting really good vibes from the chronic collaboration.

@Mij link does not seem to work

Anyone can share an archive link of this axios article publsihed today? Long COVID may have slipped from the headlines, but a group of senators wants it to loom large in the coming appropriations process...

They agreed to sign! Who can I private message to send the proof? And also share some questions they asked me, looks like we might get a signature from Long Covid Europe and Long Covid Kids Switzerland too. :)

As a very severe bedridden and mute person, this and the lack of acknowledgment of severity is suprising. Also the treatment of diet as such a major management strategy really feels like another flavour of the “make deep breathing”. Both of these things are good but they are also good for...