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Dianna Cowern aka Physics Girl's Instagram "In one week Dianna is live-streaming a full day of her life to share what the experience is like for someone suffering from chronic fatigue. Dianna and Kyle are raising money to support research and clinical trials for long COVID. The live stream...

Here are the references from that test page: Thread on the last reference: Immune-Based Prediction of COVID-19 Severity and Chronicity Decoded Using Machine Learning Weird that they just have two references and make it seem like four. One is just plain duplicated, the other they cited both...

It looks like this test might now be available to the public: "Our partnership with IncellDx, a leader in cellular diagnostics has led to the launch of the IncellKINE test, a cutting-edge chronic inflammation test capable of determining Long-COVID, Lyme Disease or ME-CFS, now available in the...

GeNeuro Announces Results of the GNC-501 Study in Post-Covid-19 Syndrome "The GNC-501 clinical trial is a Phase 2 study in patients suffering from post-COVID-19 neuropsychiatric syndromes, testing temelimab against placebo. The study enrolled over 200 patients in Switzerland, Spain and Italy...

As $20 per month is kind of significant for me, and it doesn't seem like this is being used a lot, and I don't need ChatGPT Premium for anything else, I'll be canceling my subscription. ME/GPT will continue to be available until July 1st. If anyone else has a premium subscription and wants to...

I just can't think of anything else. Maybe because it's gotten slower, but it didn't get much slower on the 18th and beyond as far as I know. I wouldn't think it'd be a constant 10k though, since it probably grew in views over time and wouldn't have 10k/day immediately.

I thought maybe it would line up with searches on Google for ME/CFS, but it seems to be pretty consistent over the past 90 days. My guess would still be the Twitter campaign made it popular temporarily.

Hypocortisolemic ASIA: A vaccine-and chronic infection-induced syndrome behind the origin of long COVID and myalgic encephalomyelitis (Provisionally accepted) Manuel Ruiz-Pablos 1, Aintzane Zabaleta 2, Bruno Paiva 2 1 Complutense University of Madrid, Madrid, Madrid, Spain 2 Center of Applied...

From ME/GPT AI: Multiple Sclerosis (MS) Systemic Lupus Erythematosus (SLE or Lupus) Celiac Disease Hashimoto’s Thyroiditis Endometriosis Migraine Honorable mentions because they satisfy all but female preponderance criteria (before treatments and tests were developed)...

I put "unaffiliated" under institution and gave a brief description of what I'd hope to use the data for when I applied a couple months ago, and my account was approved. I can't remember how long it took to be approved. Edit: I remembered I can check my emails for dates. It took four days to be...

The Press: "Young father with chronic fatigue desperate to get well for his family" "Tyrone Hauraki’s limbs feel like they have ropes tied around them. He’s exhausted every day. He has brain fog, and a tickle in his throat that does not go away. Bright lights hurt his eyes, conversations are...

Subjective brain fog: a four-dimensional characterization in 25,796 participants Ali Alim-Marvasti, Matteo Ciocca, Narayan Kuleindiren, Aaron Lin, Hamzah Selim, Mohammad Mahmud Abstract Importance: Brain fog is associated with significant morbidity and reduced productivity and gained...

I can't figure out how to eloquently say this, but I'll add that something like fundraising feels much harder than browsing the research landscape. The willpower itself to do something that feels less interesting takes energy, even if it seems to require the same amount of energy typing on here...

Test a large number of people for as many common toxins as possible, including things like DDT, Dieldrin, HCBs, PCBs, Mirex, Lindane, Mevin-phos, p-dichlorobenzene, Pentachlorophenol, Carbaryl, Toxaphene, and look for any correlations with symptoms. Not necessarily limited to ME symptoms, it can...

Faecal microbiota transplantation for sleep disturbance in post-acute COVID-19 syndrome Raphaela I. Lau, Qi Su, Jessica Y.L. Ching, Rashid N. Lui, Ting Ting Chan, Marc T.L. Wong, Louis H.S. Lau, Yun Kwok Wing, Rachel N.Y. Chan, Hanson Y.H. Kwok, Agnes H.Y. Ho, Yee Kit Tse, Chun Pan Cheung, Moses...

Yeah maybe, but seems to be a dramatic drop four days ago (yesterday still low), but it's been slow for longer than that.

Interesting. It could be. But I just searched a few random things (PEM, David Tuller, Avindra Nath, 2-Day CPET) and MEpedia was always one of the first five results.

A Couple's Quest To Stop A Rare Disease Before It Takes One Of Them, 19 June 2017 (This is about fatal familial insomnia, a prion disease.) "In less than a year, Sonia's mom died. An autopsy showed Kamni had died from something rare -- a prion disease. Specifically, one called fatal familial...

Follow up article from The Guardian: Second Canadian scientist alleges brain illness investigation was shut down "A senior Canadian federal scientist has alleged that the government shut down an investigation into a mystery brain illness in New Brunswick that he believes may have affected 350...

Views on MEpedia seem to have gone way down the past three days. I wonder why. Maybe the lower numbers are more normal, and the tracking only started after the start of a temporary upswing, maybe caused by something like the JonVsJonVsME campaign three days before the start of the data.