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so now they’re saying people are hypnotising themselves………

Let’s hope so

Why have we changed the process :whistle:

The MECFS Gesellschaft are the only CH organisation so far.

Hi all just to flag up that fewer than 150 signatures are now needed to take the petition over 11,000

If you’re open to support from a range of health professionals working within the existing NHS structures then you don’t look a gift horse in the mouth. Probably if you look into it at all you accept the narrative that FND academics/clinicians has moved on from conversion disorder mentality on...

Yes blurry eyes is a good one also if I have to turn down the volume on tv or radio Gait is definitely an indicator for me that battery is draining or has already gone to very low.

Are easy to use :whistle:

Definitely word finding/losing thread in speech Also voice croaking rambling writing so again poor control of the thread length of posts, not realising how long I try not to post long rambling but occasionally don’t realise until later

They would say covered by long term conditions

:laugh: :laugh:

Yeah people who use twitter as their only means to communicate need to adopt a different strategy with at least one other option.

@dave30th in case you’ve not seen the quotes in previous post from SNTG

I would have said ME Association and ME Research UK until this year’s experience with MEA spending £90k on the PROM project dropped a bombshell on my confidence in their decision making So MERUK it is then

Some people at the start of LC didn’t know about ME or if they did it was the stereotypical incorrect idea of what ME is. So they didn’t see any connection. even people who see the read across might be reluctant to accept ME diagnosis due to stigma as many key workers likely caught COVID and...

Back of the net Ponting!

There is a significant percentage (over 30% I seem to remember)of Pwme with gradual onset. I’m one. I was diagnosed 8 years ago 7 years ago I saw a specialist who said I had had ME for 10-12 years.

ME A did contribute a lot and presumably Charles S was directly involved in meetings with NiCE. Notably they did the petition which received a good chunk of signatures (although nowhere near as many as the amazing numbers more recently in Germany)

Why don’t the b******* listen

Interesting generally there’s also information about comms actions including getting information out to all GP surgeries and buying ad space on the waiting room screens @Russell Fleming in his role as head of comms