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Moved from the Long Covid in the media thread From @MSEsperanza From Germany's Kliniken Schmieder group: Annual report 2022 https://klinikenschmieder.pageflow.io/jahresbericht-2022-7b6c23d5-b0bb-4568-8631-37714506cc74#postlong-covid Machine translation by Firefox: @PhysiosforME –...

I can't even remember many groups systematically taking the really basic measurements (urine volume, makeup and frequency; skin & core temperature; sweat makeup; heart rate and variability; blood pressure & gases; blood sugar; stress hormones) whilst rested and then during the onset of PEM...

Yes, I mentioned that in my response. And that working from home opportunities are steadily being rolled back post-pandemic, and that not everyone has skills relevant to working from home (which is often computer-based), blah blah blah. I also wrote a screed about the mobilising factor being...

I didn't mean that it necessarily is obvious, but you know how things are sometimes so logical that it appears they ought to have been? Like the discovery of air, when we'd all been breathing it for millennia and knew it was a bit problematic if we suddenly couldn't. There's a chance it could...

I think it might be the wrong questionnaire for this. I suspect if you don't address the questions directly, your responses might be disregarded. There is a question where you could talk about the impact of the changes in more general terms (Q7) and about the risks of removing the limited...

I have some long-standing thoughts, but none of them are explanations: When it is worked out it sounds obvious, and people wonder why it took so long. or/and It was elusive because it couldn't have been measured before the introduction of a new technology, or an unexpected way of combining...

Yes, they'll see you're knackered. At first glance the other possibilities are bored or depressed, but if you're interacting with someone, it usually doesn't take long to narrow it down to knackered. You just need to decide how much explanation you want to give. I've always found a grin and "I...

You don't have to name it, though. People at the music group I've been attending know I'm disabled (it's obvious), but none know it's ME. This week I turned up barely able to function because of brain fog, and in between laughing at myself or getting frustrated, I apologised to the tutor and...

In my case, I'm dead jealous of the skill and wish I could get halfway to the ease and economy many of them have! Not a chance. Even after 60 years of practice, I still sometimes communicate as if I've been locked in solitary confinement and am not used to moving my mouth, and I'm...

Since the 'flu jab is different each year, it's probably difficult to work it out. If someone has a really unpleasant reaction to it one year, they're unlikely to want it the next. They won't know whether they're vulnerable to a particular type of 'flu vaccine, or they're likely to be sensitive...

I wasn't sure of the answer to your question, so I decided to ask ChatGPT. ––––––––––– Q: Are there diseases where viral persistence has been shown to be a factor? A: There are several diseases in which viral persistence plays a significant role. Viral persistence refers to the ability of a...

Trundling about in a wheelchair, counting stuff. It doesn't necessarily involve a huge amount of walking even if you don't use a chair, as survey areas can be quite small for some species. It probably wouldn't be very appealing to anyone who didn't find newts or butterflies or snakes...

I've always made social relationships through doing things, as I can't base conversation on a blank canvas either. I made some new contacts last month by starting music tuition at a local community group, and then staying on for the session afterwards. The lessons are only half an hour, and the...

It's advertising. I'd be having fun writing parodies of this stuff and submitting them as preprints, if the energy were available.

What's the academic term for 'medicine is really stupid sometimes'? Because that's the third version of pragmatism. It wins the pragmatism contest because you can describe the entire theory in phone emojis.

They'll soon be discovering that the EN-RAGE gene is upregulated in middle-aged women, mark my words.

Yes, but as I've had them since I was a kid, I doubt mine are directly connected to ME. In the UK they're usually called retinal migraines, as it seems to be the retina that goes screwy. One of the things that reliably triggers mine is bright sunlight early in the summer, before I've...

Sounds great, I hope we get to hear afterwards about what she said.

It is, but if it gets unwieldy, relationship mapping software would make it a lot easier. Setting projects up always needs a bit of an investment of cognitive energy/capacity, but once you've got started, the software's are usually quite intuitive. The only type I've used myself are family...

I had the pneumococcal a couple of years ago. I don't usually react badly to vaccines, but I did feel quite tired for a couple of days after this. Nothing else though, and no increase in ME symptoms. As well as some types of pneumonia, the surgery told me that the jab may also help protect...