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"...ME/CFS brings with it a lot of “losses” but it may also produce some “gains” – such as being able to spend more time with family. So it may be helpful to prepare a list of your losses and gains, and then work through how you are going to try and deal with these issue..." Wow. Just wow.

"There were negative associations between overall HRQoL and...having been to rehabilitation stay..." Quelle surprise @andypants ?

If only 1 in 20 kids get a diagnosis, that means the other 19 got either no diagnosis (MUS?) or wrong diagnosis (probably depression / anxiety / etc). So the school nurses would probably think that their teen patients have a mood disorder, especially since the delayed response to exertion...

I'm continually dismayed that journalists get so much wrong in their reporting. I thought their job was to report the facts, not an approximation or interpretation...or fabrication.

I've talked to some folks that, in retrospect, attribute their pre-ME experience of chronic fatigue / tiredness for years as early / mild ME. But it doesn't sound like you @Dechi and @rvallee don't put your experiences under the ME rubric.

Imho, counsellors should not be giving advice. They can share information, or share what others have found helpful in similar situations - but counsellors should not be putting themselves on a knowledge power pedestal - they should be facilitating (process) the client's choice (content) how to...

Are you (or someone) able to reach out to the patient / author privately to educate her? ETA: @Simone

I have a colleague from my HIV advocacy days who since contracted West Nile Virus and now she has ME.

"One gastroenterologist even suggested to Lopez that his wife, a nurse, might be poisoning him...but failed to order toxicology tests." "His primary care doctor at the time, Lopez said, was dismissive, telling him he was “anxious” and “working too hard.” It was an explanation he would hear from...

I suspect that because its children, many would rely on their parents to do the research etc. And unless they can discern the exertion = sickness a day or 2 later, it can be tough to figure out - or for a physician to pick up on (ignoring the over-psychsomatization of illnesses generally...

I couldn't help but notice Netflix's well timed release of Pandemic: How to Prevent an Outbreak www.netflix.com › titlePandemic: How to Prevent an Outbreak | Netflix Official Site

My thoughts exactly.

"...these symptoms can manifest months to years after the initial injury and as this cluster of symptoms hasn’t been previously grouped together, it often goes unidentified in the medical community." Slight aside...I just published an interview with a woman who had 100+ ECT (aka shock therapy...

This is such a big milestone in your efforts, how are you rewarding yourself? (My wee brain wants to say 'shoes'...)

"...can interact with common heart medications, including statins and blood thinners..." Good reason to avoid statins and blood thinners, and not vice versa.

To parse the idea, I don't think experience of sadness is requisite to experience happiness. However I'd postulate, appreciation of happiness is increased the deeper / more frequent the sadness experience. I know I appreciate (emotionally) good (physical) days much more because I've had so...

I also wonder how many depressions (there are more than one kind of depression) are caused by biological illness (cancer or other causing brain inflammation / toxicity / etc), not psychological factors? In this context, CBT for 'treating' depression is useless at best, and potentially harmful...

"...Since PNES are cared for by a variety of different modalities, treatment orientations, and models of care, effectiveness outcomes such as seizure outcomes and utilization of emergency visits for seizures will be assessed. Outcome measurements such as seizure frequency, emergency room visits...

Oh, don't know why that is. I'm pretty ignorant of the whole SNPs thing and am just stumbling my way through it now. A friend sent me this link if its helpful: https://www.malacards.org/card/adenosine_monophosphate_deaminase_1_deficiency

Ta da...