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"This is also a facet in medical science — diseases are often considered psychosomatic by default until a diagnostic test or mechanism is discovered and proven, over and over again. From heart disease to ulcers to multiple sclerosis to myalgic encephalomyelitis and more, new ideas took years and...

I suspect quite a few GP appointments don't actually need the patient in the room, so in some instances video chat between GP and patient can be very efficient on both ends.

"...The surgery was, however, faulty as doctors accidentally removed my bladder alongside the uterus."

I just emailed Hillary to see if she has a copy.

Hillary did send me the attached copy - the typing is too small to be included in my show notes - the contempt for sick and disabled people (ie ME patients) is probably astounding to those without ME or its ilk...

Hey folks - here is part 2 of my interview with Hillary Johnson, author of Osler's Web and other writing about ME. Here is the video trailer: And the podcast link: https://medicalerrorinterviews.podbean.com/mf/play/a5uu59/Hillary_Johnson_interview_part_2_audio_.mp3

Seems like your letter is a success @Trish - congrats on job well done.

What's that saying?....'years of hard work to be an over night success'. I'd say key elements were: - usng an inside / outside strategy - having the right people with the right skills in the right roles - but numero uno is building relationships - both with policy makers and within the...

I guess you've not received a response from Chowdhury yet @Trish? I'm now eager to see how / if she replies.

Thanks Chris - we're lucky to have had Hillary do all that reporting and writing. It is important to ME history.

I had the honour to interview Osler's Web author Hillary Johnson - in part 1 she shares about the intersection of her career, her experiences with ME and medical errors, and uncovering the decade long crime of diverting ME research funding elsewhere...

I think that was about the best ME media coverage to come out of Canada - mind you, there were still some minor inaccuracies, but compared to the 'reporting' of his peers, this was a huge step forward in getting a media outlet to use accurate language.

CBC will airing a video interview tonight at 9pm ET.

Yes, thanks Richard, this will be very useful when we engage the Canadian Medical Association.

Hey folks, I interviewed mystery author Jayne Barnard about her experiences with permanent damage from medical error and living with ME. Jayne was severely ill for many years - bed bound, could not finish a sentence - but has orchestrated enough of a recovery to become an award winning...

@mariovitali - It is so frustrating trying to get funding for ME research, and the Ramsay awards seemed like such a good fit - no doubt it is discouraging not receiving funding, especially when so many patients are suffering and so much research needs to be done - since there is so little...

Is this just the psych brigade bringing more people under their 'care' for pwME? Deny chronic Lyme, give them ME diagnosis, shuttle them into GET / CBT. Retire early.

Medically gaslighted. My interview with Lily, who has ME, and her experiences with health care and a psychiatrist who insisted her physical symptoms were merely due to psychological factors and that Lily must accept her psychosomatic diagnosis. But Lily is no shrinking violet and sets about...

I'd heard of some nurses taking a swipe of the vaginal secretions and plopping it in the mouth of a new born baby by c-section so they get those microbes.

Stacey has ME... Double hit. Journalist and mother of two Stacey Roy has been permanently injured by a medication that makes her disabling sensitive to smell, taste, light and sounds. That makes being a Mom much harder. Stacey also has a complex disease but even when she's in medical...