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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Paul Garner: Covid-19 at 14 weeks—phantom speed cameras, unknown limits, and harsh penalties June 23, 2020 https://blogs.bmj.com/bmj/2020/06/23/paul-garner-covid-19-at-14-weeks-phantom-speed-cameras-unknown-limits-and-harsh-penalties/
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    Special edition of the journal Work with at least 12 articles on ME/CFS

    Some or all of these are worthy of their own threads, but I'm not going to set up those threads at this time. From: Dr. Marc-Alexander Fluks Source: Work Preprint Date: June 16, 2020 Guest Editor: Amy Mooney ___ Jacobs K. From the Editor. Work. 2020...
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    DecodeME - UK ME/CFS DNA study underway

    https://www.thetimes.co.uk/edition/news/chronic-fatigue-syndrome-search-for-genetic-clues-kfclg0qh6
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    DecodeME - UK ME/CFS DNA study underway

    https://www.theguardian.com/society/2020/jun/23/uk-to-launch-genetic-study-chronic-fatigue-syndrome-cfs
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    Members of the European Parliament call for more funds for research into ME/CFS

    Thanks. I've highlighted it in the number of places to the Irish ME/CFS community.
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    August 21, 2020 IACFS/ME Virtual Conference

    Thanks. I checked and at the time I posted there was nothing on the website.
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    August 21, 2020 IACFS/ME Virtual Conference

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    News from Aotearoa/New Zealand and the Pacific Islands

    To facilitate sharing:
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    A general thread on the PACE trial!

    Somebody involved in advocacy has asked me the following. I said I didn't know, but I could share it: --
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    ME Action: The EU committee on petition is preparing a resolution on ME

    Without getting into a debate on the Brexit issue, it would have been good to have the UK as part of the EU for this vote. More people are actively interested in ME and CFS advocacy in the UK than in most if not all countries in the world.
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    ME Action: The EU committee on petition is preparing a resolution on ME

    One person has just sent me this. --- Another message from this person: ---
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    Massachusetts ME/CFS & FM Association launching Research Club Support Group on Zoom this month

    I wasn't personally invited, if that's what you mean. I have never paid a subscription, I'm just on an email list that anyone can join. Their last message about support groups was subsequently posted publicly: https://www.massmecfs.org/newsletters/738-2020-05-may-newsletter You have to register...
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    Massachusetts ME/CFS & FM Association launching Research Club Support Group on Zoom this month

    From an email I got today:
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    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Yeah, I put "Discusses various distressing topics" when sharing the videos e.g.
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    Comparison of Diagnostic Criteria - discussion thread

    I was told about the videos via these tweets!
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    Comparison of Diagnostic Criteria - discussion thread

    Merged thread https://www.me-international.org/blogs/myalgice-videos-understanding-diagnosis
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