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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Feel free to delete if it has been posted already
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

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    NICE ME/CFS draft guideline - publication dates and delays 2020

    I thought I'd give these a spin for those who never saw them before: https://meagenda.wordpress.com/2007/09/06/a-selection-of-points-the-barts-cf-service-made-during-the-nice-guidelines-for-cfs-me-tom-kindlon/ What a bizarre world to live in where a specialist health service would make a...
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    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    List of interviewees for "How does the disease start?" in order: Dr Nina Muirhead Grace R Lydia Dr Ben Marsh Linda Catherine Hale Joan McParland John Peters Anna Naomi Whittingham Edna (GP who first became ill during the time of the Royal Free outbreak!)
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    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    *Quick list of interviewees for "Reduced Function" in order: Dr Ben Marsh Dr Nina Muirhead "R" Grace Lydia Linda Graham McPhee Naomi Whittingham John Peters Anna Tom Kindlon Vera Kindlon Joan McParland Planning on watching the other one tomorrow
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    Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome (2019) Tabby Davies, Simon Jones, Ryan Kelly

    This paper is cited by this thesis https://digital.lib.washington.edu/researchworks/bitstream/handle/1773/46434/Schroeder_washington_0250E_21985.pdf?sequence=1&isAllowed=y to back up these 2 points:
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    Symptoms, function and quality of life in myalgic encephalomyelitis/CFS: an Australian based, cross-sectional study, 2019, Donnelly

    From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/ https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf
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    Whitney Dafoe Updates

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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

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    Whitney Dafoe Updates

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    Trans-NIH ME/CFS Working Group Telebriefings 2020-2021 (next telebriefing March 30 2021)

    Just highlighting this is on tomorrow.
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Merged thread Free full text: http://www.ieti.net/tes/2020V4I103.html How would a post-virus chronic fatigue syndrome affect the performance of workers that fell ill from COVID-19? (full text in pdf)
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

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    Massachusetts ME/CFS & FM Association launching Research Club Support Group on Zoom this month

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    A cohort study of whether parental separation and lack of contact [...] predicts disease severity [...] in young peoples ME/CFS, 2020, O'Donnell et al

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    A cohort study of whether parental separation and lack of contact [...] predicts disease severity [...] in young peoples ME/CFS, 2020, O'Donnell et al

    https://adc.bmj.com/content/105/Suppl_1/A188.1 PDF
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.cdc.gov/me-cfs/
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

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