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    Blog Africa Clockwise: M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness

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    New young adult fiction book by Penny Joelson where main character has Myalgic Encephalomyelitis

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    Blog Africa Clockwise: M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness

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    Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline, 2006

    For what is worth, this is something I wrote in 2012 about the evidence regarding CBT and GET: http://journals.plos.org/plosone/article/comment?id=10.1371/annotation/8f8ee0a6-dca3-4e0f-b0b7-9d5d504a18a2
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    Podcast: TWiV Special: David Tuller is PACEman

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    Assessing Randomised Controlled Trials

    I agree such guidelines can be useful. I have cited CONSORT guidelines in some of my publications. For example:
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    CBT for MUS therapist training day, Bolton, UK, 21st August 2018

    A post on my Facebook page on this Carly Maryhew The thesis of the Dr running the session is Louise Barber. You can see her thesis on CFS at http://e.bangor.ac.uk/4402/2/440964.pdf (I have downloaded in case access becomes locked). Very typical BPS approach, where symptoms are maintained due...
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    Truncal ataxia or disequilibrium is an unrecognised cause of orthostatic intolerance in patients with myalgic encephalomyelitis (Miwa, 2017)

    https://en.wikipedia.org/wiki/Romberg%27s_test
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    CBT for MUS therapist training day, Bolton, UK, 21st August 2018

    I've now highlighted this elsewhere
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    Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome, 2018, Burgess et al (inc Chalder)

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    Truncal ataxia or disequilibrium is an unrecognised cause of orthostatic intolerance in patients with myalgic encephalomyelitis (Miwa, 2017)

    In one of the CDC papers by Bill Reeves and team, they said they excluded people from the diagnosis of CFS if they had a positive Romberg test. I haven't heard any one else doing it. It doesn't seem like a good idea.
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    Truncal ataxia or disequilibrium is an unrecognised cause of orthostatic intolerance in patients with myalgic encephalomyelitis (Miwa, 2017)

    Another person whose result varied: It is interesting if a test is not reliable, i.e. results vary with retesting.
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    Truncal ataxia or disequilibrium is an unrecognised cause of orthostatic intolerance in patients with myalgic encephalomyelitis (Miwa, 2017)

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    Truncal ataxia or disequilibrium is an unrecognised cause of orthostatic intolerance in patients with myalgic encephalomyelitis (Miwa, 2017)

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    Truncal ataxia or disequilibrium is an unrecognised cause of orthostatic intolerance in patients with myalgic encephalomyelitis (Miwa, 2017)

    https://onlinelibrary.wiley.com/doi/abs/10.1111/ijcp.12967
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    Association between cytokines and psychiatric symptoms in chronic fatigue syndrome and healthy controls (2018), Groven et al

    CDE stands for Common Data Elements. Researchers in the US will be encouraged to use scales that are mentioned under the different categories. This could perhaps influence what researchers in other countries do.
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    Association between cytokines and psychiatric symptoms in chronic fatigue syndrome and healthy controls (2018), Groven et al

    The Science for ME forum also made a submission. The Chalder Fatigue Questionnaire was subsequently dropped
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    Ketogenic diet

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    ME advocates you can endorse (=vote for) in the WegoHealth awards 2018

    Terri Wilder https://awards.wegohealth.com/nominees/15895
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    Latent class analysis of a heterogeneous international sample of patients with myalgic encephalomyelitis/chronic fatigue syndrome (Leonard Jason team)

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