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is this document supposed to give covering those areas of the country where the CCGs don’t currently commission any specific services for PWME. Aren’t they going to try to push back? Should they be clear that there should be specific services in every CCG area?

1.agree DWME comms need big step improvement in quality before we could actively recommend. 2. I think it is worth making the point about specialist nurses again

Briefing 16 pages long is rather unwieldy needs to be as succinct as possible. MPs have a zillion topics to get their heads round. Personally I would go with ME Action one as an initial approach.

Ok thanks I’ve never seen SA used before.

There were briefings put together for the 2019 parliamentary debate to save you reinventing the wheel. They will be linked from threads on the forum.

Yes dry eyes, but I’m told it’s common part of ageing so probably that in my case as is the need for varifocals

SA?

Yeah it does my head in when people insist on telling me how well I look

This was covered on the main BBC TV news tonight so quite a big reach.

Great result

“seemed in great health” Yeah because people with poor health have never managed to push themselves through a performance on stage before.

Yes Charles Shepherd on behalf of MEAssociation complained to the Advertising Standards Authority about his claims of LP being a cure and he had to change his website wording...

Nauseating

https://www.bbc.co.uk/news/business-60353916 Looks like people around the world are reconsidering their priorities

Oh sorry I missed that

https://www.ageuk.org.uk/information-advice/money-legal/benefits-entitlements/bereavement-benefits/ This may be useful too

Not just physical stuff I can manage to read books one short chapter at a time if I go somewhere else where I don’t have to do those chores. No way I can do that at home.

https://www.gov.uk/new-state-pension/inheriting-or-increasing-state-pension-from-a-spouse-or-civil-partner Here’s the relevant page on GOV.UK hope it is of some help

Maybe just me not registering is this a new LC group? i guess I shouldn’t be surprised as we have a multiplicity of MECFS groups.

Did they give any reasons for the 3 dropping out? also it’s a bit of a bee in my bonnet but I spotted that they had to cut out smoking and drinking. Surely if that was common amongst all these youngsters just doing that will make them healthier after 3 months and if there were more smokers in...