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  1. NelliePledge

    Facts and Myths about Chronic Fatigue Syndrome, 2022, Per Fink et al. (Danish Medical Journal article)

    I decided not to read this. Whatever Fink claims to know about CFS seems to be myth. So at least one word is appropriate
  2. NelliePledge

    Gupta amygdala training program for ME/CFS, FM and Long Covid - news and discussion

    Probably best to contact them to ask. @Russell Fleming doesnt get chance to come on the forum but might see this.
  3. NelliePledge

    Open Medicine Foundation (OMF)

    There’s a discussion thread about sleep here https://www.s4me.info/threads/sleep-problems-in-me-cfs-discussion-thread.23020/
  4. NelliePledge

    Exploration of the idea of a register of patient advocates

    I think this could make all the difference to getting research of the quality needed. I took part in the final PSP workshops and they had plenty of patient applicants for those so I don’t think there would be difficulties getting people willing to take part in patient involvement. I like the...
  5. NelliePledge

    BJGP Editorial: Long COVID in children and young people: uncertainty and contradictions by Chew-Graham et al

    So is this evidence of evolution of Chew Graham approach or trying to preserve as much MUS thinking as can be got away with?
  6. NelliePledge

    United Kingdom: Science Media Centre (including Fiona Fox)

    That’s why it’s good to see considered responses like @Lucibee s draft. It’s very far from the social media knee jerk response that they might prefer.
  7. NelliePledge

    Trading Lifespan For Health

    Difficult at my age/severity(milder end of moderate)/family history to come to a judgment. On the positive side I might have 20 more years in me. I have some hope because of my house situation calming down with no further work that I can cut down significantly on having to over exert. And may...
  8. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Good to see he made it there think the fight will continue, but we’re going in the right direction now
  9. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Not an ideal day to try to get MPs to focus on something other than party politics. I hope Javid will still be able to speak at the APPG this pm.
  10. NelliePledge

    United Kingdom: Science Media Centre (including Fiona Fox)

    The publishers blurb includes the usual supportive quotes from famous people Paraphrasing Justin Webb from the BBC seems to think this is how to talk about science Spiegelhalter says there are some compelling stories Al Khallili says something…. perhaps they should all be questioned...
  11. NelliePledge

    United Kingdom: Science Media Centre (including Fiona Fox)

    Excellent review on Amazon @Trish
  12. NelliePledge

    United Kingdom: Science Media Centre (including Fiona Fox)

    How can she be a victim of disinformation she is supposed to be a media expert yet has swallowed one perspective and failed to fully research the whole picture.
  13. NelliePledge

    United Kingdom: News from Forward-ME Group

    It would be easier to read with more white space the text is quite closely packed
  14. NelliePledge

    Mpox, formerly called Monkeypox

    I’m old enough to have had the smallpox vax as a child so have less to be concerned about for a change.
  15. NelliePledge

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Great work I hope the connection works out well :thumbup:
  16. NelliePledge

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    he’s not the only person to have been taken in by BPS crew that’s perhaps understandable if someone works on the basis that their peers are behaving with integrity etc - all the standards of public life. Also perhaps once the situation became clear he didn’t understand how much effort it would...
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