Search results

Here is link to today's programme of Malou efter tio about ME, health care (or lack of) for ME-patients in Sweden and the need for more research. Duration 16 minutes. Language: Swedish Pernilla Zethraeus har varit svårt sjuk i ME/CFS sedan 2002

Great news about Efter 10 med Malou. Didn't she recently interview the autor Karin Alvtegen on ME? Do you have a link to today's programme? Unfortunately the doctor has written a new blogpost at Dagens Medicin (a newspaper for health-related news) supporting Lightning Process, the...

Thank you @Andy I didn't know you could just click on each response for full text. That made it a lot easier :-) Thank you also @strategist ! There's another reply as well from Tronstad/Fluge/Mella from today. I've added it to my previous post about the debate.

The debate about the Tronstad/Fluge/Mella-study on ME and pyruvate dehydregonase in the journal for the Norwegian Medical Association continues. It started off with Yngve Thomas Bliksrud's "Tenuous link between chronic fatigue syndrome and pyruvate dehydregonase" This has been translated into...

Is now available to be downloaded here Contents: Search for new trustees Fundraising websites NICE guidelines Shopping online Tolerance induction Stay in touch Role for autoantibodies AMPK activation Research bites Recent fundraising

What showing up looks like for someone with chronic illness - by Christina Baltais. - So what does “showing up” for someone with chronic illness actually look like? These are the ways my online ME/CFS community felt the greatest support, when asked to reflect on instances since their ME/CFS...

For third day in a row the Swedish newspaper Svenska Dagbladet has a featured article on ME. First it was an interview with the crime fiction author Karin Alvtegen and her life with ME. Then it was an article on the welfare system and ME (seems patients were upset about this one, as it mixed...

Gosh I like this forum. Seems I'm covered for now, but thank you for offering to help!

Lovely to wake up this morning with help offered in the inbox. Thank you SO much!!

A Norwegian paediatrician gave a great interview to the Norwegian ME Association about cognitive challenges in adolescents with ME. Some have asked for a translation to English which is now done. It would be great if anyone would volunteer for a proof reading. The text is approximately four...

Agree. More from the article (google translated) In 2015, stress-related symptoms, ie reactions to severe stress and adaptive disorders, accounted for almost half (49 percent) of all illnesses lasting more than 14 days, according to the Social Insurance Fund. Some of these are acute stress...

New article today in Svenska Dagbladet (whom yesterday had a very good interview with the crime fiction author Karin Alvtegen about her ME). This time they write about social security and ME. They've done som digging and claim that 30% of all long term sickness leaves are due to ME. The...

Good idea @Diwi9 to make a thread for this video. I watched a lecture of prof. Hornig some time ago, and understood perhaps 5%, but this interview was really comprehensive. Hope others will enjoy it as well.

Interview with Mady Hornig by The Norwegian ME Association from her recent visit to Norway. She talks about the ME, research, possible subgroups.. Duration: 39 minutes. Language: English with Norwegian subtitles

Interview with the famous crime fiction author Karin Alvtegen in one of the biggest newspapers in Sweden. She talks about her ME, the every-day struggle and the need for more research and knowledge. She is published in 28 countries and a big celebrity in Sweden. The article is behind paywall...

Great to see that these projects can start up!

The Swedish doctor Björn Bragée is known from among other things a TV-show (Arga doktorn/The angry doctor) where he helped patients with insufficient care. He has recently opened a medical clinic for ME-patients. He was interviewed on Swedish television today where he talks about ME, the...

A good and thorough article in the Journal of the Norwegian Psychological Association about a family where several have ME. Due to lack of knowledge on ME from health services, they experienced twice to have the child welfare authorities involved. The article describes what this did to the...

A 12 year old boy talked about ME with his doctor Kristian Sommerfelt in front of medical students :):thumbup::trophy@ Forelesning for legestudenter In English: A young hero Because of his ME, Truls is rarely able to leave home. But when his doctor Kristian Sommerfelt asked for his help in...

The researchers Karl Johan Tronstad, Øystein Fluge and Olav Mella with a response. Kronisk utmattelsessyndrom og pyruvat dehydregonasefunksjon Edit to add: Google translation: Tronstad/Fluge/Mella: Chronic Fatigue Syndrome and pyruvate dehydrogenase function Many thanks to @Andy for helping...