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Do you happen to recommend any stroke rehab resources/sources? Things that helped? (ETA: bolded the relevant bit in your comment)

I’m not saying that that’s what the media will take from it. Nor what those running the study might morph it into but it is what the study says it was trying to do. I sincerely hope they stick to that. I feel a lot less comfortable with the predictions from younger ages. I’d need to know a lot...

Someone wrote to me (in passing) about this study and I wrote more in reply than I intended. So, getting more out of my spoons, I’m sharing my reply here too. [ETA: adding some extra spacing for ease of reading] The walking speed study is about using walking speed as a metric for assessing...

Oh, and there’s medsafe: https://medsafe.govt.nz/regulatory/DietarySupplements/Regulation.asp Which says it has to be a substitute for a food you might consume as part of your diet, not impinge on biosecurity (can’t be a new plant or animal or other organism to the country and adequate measures...

Googled pyramid schemes https://comcom.govt.nz/consumers/dealing-with-typical-situations/pyramid-schemes But not sure if this counts as a ‘gimmick’ product - see the link. Maybe. I’ll leave that to someone else with more spoons. There is of course consumer protection law...

Might not be relevant but I have a question. I recently tried some games (Elevate and Luminosity). The task switching games were weird because I often found that I knew the correct answer (task switching working ok) but couldn’t remember how to work the controls (do you swipe from or to the...

This. (I reformatted @Trish’s post for my own emphasis and {interjected my own words} with curly brackets)

Hi @RoseE, could you please fix the link to ‘give a little’ so that it’s not via a Facebook link? Or is that intentional in some way? (The link is currently...

Wow, looks like a good step up on what was out there when I was diagnosed. I hope you get lots of constructive feedback here.

Sorry if I’m being obtuse: how are the answers graded or used to determine disability?

Thanks for reminding me about pubmed! Looks like this is a good one to ask the doctor about next time I do go in as there are three things that could fit in my case but the most likely is still some sort of malnutrition (which would not be a surprise). Just realised this is a public thread so...

Did anyone find anywhere reputable to find out more on ALP? Any idea why ALP might go down? As in dropping steadily over a few years and now distinctly low (I noticed it in previous years but now it’s being flagged by the lab as low - reminds me of when I got hypercalcaemia years ago but that...

Which are the “five routine pathology blood test markers that collectively predicted ME/CFS” over half the time? Does it say?

Voted before I read your post. I guess by your standard (2 or more) I don’t have GI symptoms?? I have chronic life-changing diarrhoea - to the point where even on a good daily dose of loperamide I often fit the criteria (3+ very loose) - [ETA: the problem doesn’t go away (or I could stop the...

I’d make a distinction between hunger and ability to eat and digest. In the sense of: The first is a motivation, a signal given by whatever it is the body does to make desires and compulsions etc. The second is a response to the action that results. E.g. I can be (feel) ravenous, driven to eat...

Why is every apparently good article behind a paywall and all the abusive junk free for all? [Economics, yup. But it doesn’t stop my frustration] Thanks for the commentary/summary! Helps to know there’s some information out there that doesn’t suggest that what I really need is the Lightning...

It’s the old ‘marketers trump facts’ in public awareness campaigns. They are getting reach with GPs and nurses because it’s a marketing campaign, funding comes from selling that idea. Whereas we’re just providing information, and not very ‘sexy’ (inspiring) information at that. People say they...

I’ve previously considered myself to be unlikely to have POTS. I can be almost normally active on very good days (paid for later). But a recent experience of tachycardia (110-135bpm when normal resting was 58-70) for days on end, and repeated instances in the days before and after that of...

I’m not wanting to start a series of n=1 anecdotes, just expressing my profound hope about also caution for the people who have already undergone these procedures and who believe them to have brought about a cure or remission. When I had surgery (properly diagnosed parathyroid-), I felt all the...

Aaaaaaaaaahhhhhhh!!!