Search results

  1. rvallee

    Ed Yong Articles on Long Covid & ME/CFS

    Uhhh, they do not. It has been distorted, misrepresented and maligned for a long time. Still is. But there is no medical understanding of the mechanisms of fatigue. And ME/CFS is not fatigue, and neither is PEM. Fatigue is a multi-system, a whole organism, issue, there is no specialty of...
  2. rvallee

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    So, is there anything we can do to pressure JNNP over their overt censorship of responses? They are clearly in violation of BMJ policies, their BS disclaimer is worthless here as none of the responses made public have any such thing, they are matter-of-fact and respectful. This should be...
  3. rvallee

    Who is Simon Wessely?

    I'd say it is time to reform Simon Wessely. But wasn't Wessely involved in the current act? It seems like he's been involved for so long, and he got a lot of what he wanted. Including stuff like IAPT, which is just as disastrous. So it looks to me like a politician who did a reform, then...
  4. rvallee

    CTV News: Prior Omicron infection didn't protect some seniors from reinfection: study

    If they were a "huge surprise", you might consider a different profession. For years we heard about how "it's not just the flu". What MD in their right mind would ever suggest that being repeatedly infected with a flu virus, several times per year with different variants, would protect against...
  5. rvallee

    Beyond Anxiety and Depression: Loneliness and Psychiatric Disorders in Adults with Atopic Dermatitis 2023 Zhang et al

    I'm really not sure if these people understand the difference between associative and causative data. Intellectually they obviously do, but I don't think they really understand what it means beyond the basic definition and how to do statistical analysis. Probably because almost all their data...
  6. rvallee

    Diagnostic accuracy of the Dutch version of the Somatic Symptom Disorder – B Criteria Scale (SSD-12) compared to... 2023 van der Feltz-Cornelis et al

    It's worthless comparing to people's opinions. The main lesson of science is that you need objective measurements. Comparing some arbitrary tool to expert opinion is not a serious thing. "Gold standards" are meaningless, you need a ground truth, an objective measurement that is absolute, relates...
  7. rvallee

    Parity of esteem within the biopsychosocial model: is psychiatry still a psychological profession?

    Although one big issue psychiatry does have, is that most psychiatrists would probably agree that we are actually suffering from depression, or maybe somatization, and frankly this proves that even if those things actually exist, as a single entity, they can't even tell the difference. So they...
  8. rvallee

    Parity of esteem within the biopsychosocial model: is psychiatry still a psychological profession?

    Aside from the absurd idea of fatigue being psychiatric, looking back at the last few years, with a few exceptions like the usual PACE gang, neurology is actually far more misguided regarding post-infectious illnesses like ours than psychiatry is. Very little comes out of psychiatry that has...
  9. rvallee

    Fundraising for ME/CFS research - opportunities, problems

    If the illness was recognized and supported by healthcare systems and the medical profession, it would be easy to raise 10-100x more money. The lack of recognition is the biggest blocker for us to fund it, including using our own money. If all they did is just that: we recognize that it's...
  10. rvallee

    Semi-supervised exercise training program more effective for individuals with postural orthostatic tachycardia syndrome... 2023 Wheatley-Guy et al

    Aw, screw it, this deserves a meme: (Text is kinda blurry so it reads: "In the tolerance of positional changes assessment using the 10 min stand test, those in the exercise group demonstrated a 4-bpm increase on average in their resting supine heart rate (77 ± 15 vs. 81 ± 13 bpm, baseline vs. 3...
  11. rvallee

    Semi-supervised exercise training program more effective for individuals with postural orthostatic tachycardia syndrome... 2023 Wheatley-Guy et al

    Also, as noted by @cassava7: So, this is worse. Do they understand that this means worse? I guess not. They talk about an increase, but this is a problem of tachycardia, where a decrease is sought. And a decrease in resting heart rate is the mark of better fitness, not the opposite. So they...
  12. rvallee

    Semi-supervised exercise training program more effective for individuals with postural orthostatic tachycardia syndrome... 2023 Wheatley-Guy et al

    Uh. I had noticed that they mentioned improvements in autonomic symptoms, but missed this. And since they're using heart rate as evaluation for their target during exercise, and heart rate is more elevated in this patient group... What does it even mean? Oh they talk about a delayed symptom...
  13. rvallee

    Long Covid in the media and social media 2023

    Noticed this from some "HR Grapevine", which from the sound of it would be a publication for the human resources industry in the UK. Although big yikes on the "likely meet the definition of disability under the Equality Act 2010". Which, although correct, means very little in real life...
  14. rvallee

    UK doctors knowledgeable in ME/CFS?

    I've seen her on twitter. She seems like one of the rare good ones who really get it.
  15. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Unfortunately, they really can. All of this should have been stopped a long time ago, but it keeps going because it's too embarrassing for the whole profession. In the end there will be only a few things left and there will still be loud insistence that it's still a massive thing, since they can...
  16. rvallee

    Reanalysis of STAR*D trial (PACE-like outcome switching scandal)

    Most of the data for SSRIs come from large drug trials. I doubt this trial actually has that much influence, frankly. Maybe in the psychiatric profession it's held up as some powerful evidence for what they do, but it's very small compared to the many large drug trials and systematic reviews...
  17. rvallee

    Review Effectiveness of non-pharmacological interventions for fibromyalgia and quality of review methods: an overview of Cochrane Reviews, 2023 Bidonde et al

    That is definitely what's needed. I still feel it's too slow for progress, but it is some suggestion of potential future progress. The halt in trial registration would be significant, and very much needed. It's one thing to speak of the future, but there is a huge mass of this in the past that...
  18. rvallee

    Semi-supervised exercise training program more effective for individuals with postural orthostatic tachycardia syndrome... 2023 Wheatley-Guy et al

    Which, oddly enough, is actually true. So they're comparing graded exercise with minimally supervised exercise, pretending that they need just the right supervision, because I guess patients can't figure out how to *checks notes* exercise. But all that's needed is minimal supervision. I guess...
  19. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Well, at this point, with the review being "independent", everything falls on Bastian. Cochrane can indefinitely defer to her, and no one else cares since they can always do the pointing thing. COPE is excusing this on Cochrane's investigation, but that investigation concluded that they should...
  20. rvallee

    Review Effectiveness of non-pharmacological interventions for fibromyalgia and quality of review methods: an overview of Cochrane Reviews, 2023 Bidonde et al

    So the evidence for treatments in widespread usage is bad, at best, but the language used still encourages to just keep using them on the pretense that, whatever, there's evidence for some of it, even though it's bad? With some added recognition that seems to give points to trials simply for...
Back
Top Bottom