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  1. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    Hm. Do you think there are reasonable arguments to classify the PACE trial as a controlled trial? What arguments are there? Is the knowledge I acquired on S4ME (that it needs adequately controlled groups to classify a trial as an RCT) disputable? Or is it disputable whether the groups were...
  2. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    In order to be able to read the correspondence, I needed to put the e-mail snipptes included in the documents in chronological order into one single document. In case anyone else finds this helpful, I leave here my excerpt of the entire correspondence from May 2019 (as requested and...
  3. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    #MEAction are right that the review authors still claim they "included eight RCTs with data from 1518 participants." Yet the biggest trial, the PACE trial, wasn't a Randomised Controlled Trial, and even the PIs called it only a "Randomised Trial". Didn't ceck the other trials. Edited to add...
  4. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    from the correspondence between Atle Fretheim (for the review authors) and David Tovey (Cochrane): https://www.s4me.info/threads/cochrane-review-exercise-therapy-for-chronic-fatigue-syndrome-2017-larun-et-al-recent-developments-2018-19.10030/page-4#post-179984
  5. MSEsperanza

    MEAction: Join Our Values and Policy Initiative! September 2019

    Could it be helpful to refer to the Declaration of Helsinki, last paragraph? Unproven Interventions in Clinical Practice 37. In the treatment of an individual patient, where proven interventions do not exist or other known interventions have been ineffective, the physician, after...
  6. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Thank you, @Kalliope I have no idea. Maybe someone requested access to the e-mails attachments and that's what was denied. (I didn't check which e-mails had attachments though). But I'm sure @Kalliope will have an answer soon. Another question @Kalliope: Do you know whether it's also...
  7. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    There seem to be two documents published on eInnsyn which we haven't seen yet (documents from 24.06.2019, published 08.08.2019) edited to add: Google translate of the title: "Complaint - Denial of access to document 12 and 13 in case 17/10566" So doesn't seem to be correspondence between...
  8. MSEsperanza

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Thank you, Jonathan, for another great letter. In case a rapid response to the BMJ needs editorial approvement, it has been approved. In any case, it's published here: https://www.bmj.com/content/366/bmj.l4898/rr
  9. MSEsperanza

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Eleven letters now.... http://www.virology.ws/2019/09/11/trial-by-error-experts-send-more-tough-letters-to-dr-godlee/ Again, thank you David and all letter writers.
  10. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    Nina Steinkopf mentions the affiliations of Recovery Norway with the Lightning Process in her article: https://translate.google.com/translate?sl=no&tl=en&u=https%3A%2F%2Fmelivet.com%2F2019%2F09%2F08%2Fen-messias-i-norsk-helsevesen%2F I'm sure the affiliations have been discussed on the forum...
  11. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    Henrik Vogt, founder of 'Recovery Norway' : "[...] the focus has beed one-sided on those who are still suffering, on the dark side. More should be written on those who make it into the light". https://henrikvogt.com/2016/08/31/cfsme-listen-to-those-who-got-well/
  12. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    Professionals about 'Recovery Norway': Rona Moss-Morris, Professor of Psychology as Applied to Medicine, Head of Health Psychology, King’s College, London, UK: “We can learn a lot from these stories about recovery from CFS – look forward to more”...
  13. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    https://www.recoverynorge.org/2019/01/20/arild-berg-me-cfs/ From wikipedia: https://en.wikipedia.org/wiki/Arild_Berg Tried to save the page to the webarchive, don't know if it worked? http://web.archive.org/web/20190911070031/https://www.recoverynorge.org/2019/01/20/arild-berg-me-cfs/...
  14. MSEsperanza

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    Organisational affiliation of the review: London Metropolitan University https://www.londonmet.ac.uk/ ETA: "Phil Parker is a post graduate researcher in the School of Psychology at the London Metropolitan University, London, UK" (Latest paper I found: Parker, Phil, Banbury, Samantha and...
  15. MSEsperanza

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    https://twitter.com/cem_oezdemir/status/1169570191900106752 Cem Özdemir is a prominent member of the German parliament. The football team VfB was relegated to the second division of the German league only this spring: https://en.wikipedia.org/wiki/VfB_Stuttgart The Tweet says: "#Point of...
  16. MSEsperanza

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    This could go on like the game "I packed my bag": I have signed a letter which was sent to you on 27 August about the pediatric study of the Lightning Process. Following the e-mails of Professor Ola Didrik Saugstad (Oslo, Norway), Professor Vincent Racaniello (New York, USA), Professor Elisa...
  17. MSEsperanza

    Exploring the validity of the chalder fatigue scale in chronic fatigue syndrome - 1998 Morriss et al

    As an aside, it seems remarkable to me that Morriss et al also used some objective measures to validate two of the constructed "four factors of fatigue", and if I understood correctly, they claim the objective measures correlated with the subjective assessments? Factor 1 (cognitive...
  18. MSEsperanza

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    How about doing a trial on the effectiveness and cost-effectiveness of trials on the effectiveness and cost-effectiveness of interventions in ME?
  19. MSEsperanza

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    @dave30th, could you take a look at this? Starting here: https://www.s4me.info/threads/investigating-the-effectiveness-and-cost-effectiveness-of-fitnet-nhs-compared-to-activity-management-to-treat-paediatric-cfs-me-2018-crawley-et-al.2592/page-3#post-198320
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