Edzard Ernst replies to one of his LP blog article's commenter:
https://edzardernst.com/2020/06/the-lightning-process-implausible-unproven-hyped-and-expensive/#comment-123663
Just spotted the abstract of the Cochrane exercise review among those links --- which, when retrieved on the PubMed...
Very good letters.
Big thanks to the letter writers Professor Jonathan Edwards and DrPH David Tuller.
Also big thanks to those sharing David's blog post on Twitter.
https://twitter.com/MECFSNews/status/1266959227987415040
https://twitter.com/StenHelmfrid/status/1267008515408834562
The BMJ Paediatrics Open has now published it, too: https://bmjpaedsopen.bmj.com/content/4/1/e000620.responses
Thank you @Michiel Tack for another brilliant piece.
It also got a nice title on David's blog post. There's rhythm in it...
Two of the authors (Sharpe & White) are on the journal's editorial board:
https://www.sciencedirect.com/journal/journal-of-psychosomatic-research/about/editorial-board
So the biggest group (38%) showed an "indeterminate pattern".
Couldn't they have done something useful with accelerometer data, e.g. if they had let particpants wear the devices at some time points during and after treatment?
Or if they at least had included PEM as a hypothesis in their...
Not an answer but maybe a hint:
From this thread:
https://www.s4me.info/threads/michael-sharpe-mind-medicine-and-morals-a-tale-of-two-illnesses-2019-bmj-blog-and-published-responses.9729/page-16#post-241133 :
Did you check your spam filter? ;-)
How about: ask i f they received the letter, attach the letter again and give them 48h(*) to tell you whether they will publish it, before you'll publish it on Virology Blog?
see also re: Jonathan's letter:
Anyway, did you see how the Dagbladet puts...
They are also co-authors of the 6 articles that constitute the thesis.
1st article:
Anthonie Janse, Stephanie Nikolaus, Jan F. Wiborg, Marianne Heins, Jos W.M. van der Meer, Gijs Bleijenberg, Marcia Tummers, Jos Twisk, Hans Knoop, Long-term follow-up after cognitive behaviour therapy for...
13 years ago in another Norwegian newspaper ....
Google translate:
"Not depression. My daughter Jennie and I were very surprised by the debate post "ME: Both body and soul" by Vegard Bruun Wyller, Kirsti Malterud, Bjarte Stubhaug and Lillebeth Larun on November 19."...
https://twitter.com/TomKindlon/status/1264661372195024896
https://www.wegohealth.com/2020/05/21/lifetime-achievement/
see also https://www.s4me.info/threads/me-advocates-groups-you-can-endorse-vote-for-in-the-wegohealth-awards-2019.10241/
and...
Thank you everyone who have pursued the requests the letter asked for.
So the link now is added at a place a bit less easier to ignore, and it says:
'A statement from the Editor in Chief about this review and its planned update is available here...
From Phil Parker's Lightning Process(TM) website on what he claims to be "Research which supports the theories of the Lightning Process":
"Dr. Bruun Wyller says: ‘[...] Based upon our findings, we have formulated a theory of sustained arousal in CFS, which seems to correspond quite neatly to...
Just wanted to drop an older not-yet-posted comment I found in my drafts folder (on David Tovey's answer regarding objective outcomes in his response to Caroline Struthers' complaint) :
@Caroline Struthers:
"Using only subjective outcomes in unblindable trials is terrible methodology. This is...
Description now removed/ sentence replaced with
"See also this list curated by Hilda Bastian...."
Link to the 'Open sheet for additional links related to the Cochrane review on exercise & ME/CFS': https://docs.google.com/spreadsheets/d/1Z6ktpOxGOYna6ApB5P49pCd_V6QMew6eiptwpFCFrH8/edit#gid=0...
https://twitter.com/hildabast/status/1263260110509359104
Thank you Hilda, also for the link to the 1st list.
I didn't suggest a DIY list, but was thinking you could put on that list all submissions you think don't fit the other list.
Actually I like the idea of an open document. It just...
https://twitter.com/hildabast/status/1263245268666875904
Apologies for any misunderstanding and thanks for whatever you did with regards to putting a warning flag on the old and current reviews. Still hard to trust anyone at Cochrane until there is transparency. Also, still no answer from...
Maybe the Dagbladet won't publish letters in English?
I think it would be good to publish it here on S4ME so anyone who wants to use it could link to the complete text; also if anyone wants to translate it into Norwegian they could add the link to the original so you won't have to authorize a...
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