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  1. MSEsperanza

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Edzard Ernst replies to one of his LP blog article's commenter: https://edzardernst.com/2020/06/the-lightning-process-implausible-unproven-hyped-and-expensive/#comment-123663 Just spotted the abstract of the Cochrane exercise review among those links --- which, when retrieved on the PubMed...
  2. MSEsperanza

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Very good letters. Big thanks to the letter writers Professor Jonathan Edwards and DrPH David Tuller. Also big thanks to those sharing David's blog post on Twitter. https://twitter.com/MECFSNews/status/1266959227987415040 https://twitter.com/StenHelmfrid/status/1267008515408834562
  3. MSEsperanza

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    The BMJ Paediatrics Open has now published it, too: https://bmjpaedsopen.bmj.com/content/4/1/e000620.responses Thank you @Michiel Tack for another brilliant piece. It also got a nice title on David's blog post. There's rhythm in it...
  4. MSEsperanza

    Patterns of daytime physical activity in patients with chronic fatigue syndrome, 2020, Chalder, Sharpe, White et al

    Two of the authors (Sharpe & White) are on the journal's editorial board: https://www.sciencedirect.com/journal/journal-of-psychosomatic-research/about/editorial-board
  5. MSEsperanza

    Patterns of daytime physical activity in patients with chronic fatigue syndrome, 2020, Chalder, Sharpe, White et al

    So the biggest group (38%) showed an "indeterminate pattern". Couldn't they have done something useful with accelerometer data, e.g. if they had let particpants wear the devices at some time points during and after treatment? Or if they at least had included PEM as a hypothesis in their...
  6. MSEsperanza

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Not an answer but maybe a hint: From this thread: https://www.s4me.info/threads/michael-sharpe-mind-medicine-and-morals-a-tale-of-two-illnesses-2019-bmj-blog-and-published-responses.9729/page-16#post-241133 :
  7. MSEsperanza

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Did you check your spam filter? ;-) How about: ask i f they received the letter, attach the letter again and give them 48h(*) to tell you whether they will publish it, before you'll publish it on Virology Blog? see also re: Jonathan's letter: Anyway, did you see how the Dagbladet puts...
  8. MSEsperanza

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Voilà -- the Larun/ Wyller/ Malterud/ Stubhaug piece: https://www.aftenposten.no/meninger/debatt/i/B3wbQ/baade-kropp-og-sjel https://translate.google.com/translate?hl=de&sl=auto&tl=en&u=https%3A%2F%2Fwww.aftenposten.no%2Fmeninger%2Fdebatt%2Fi%2FB3wbQ%2Fbaade-kropp-og-sjel
  9. MSEsperanza

    (Thesis) Cognitive behaviour therapy for chronic fatigue syndrome Long-term follow-up and Internet-based treatment, 2020, Janse

    They are also co-authors of the 6 articles that constitute the thesis. 1st article: Anthonie Janse, Stephanie Nikolaus, Jan F. Wiborg, Marianne Heins, Jos W.M. van der Meer, Gijs Bleijenberg, Marcia Tummers, Jos Twisk, Hans Knoop, Long-term follow-up after cognitive behaviour therapy for...
  10. MSEsperanza

    Lightning Process study in Norway - Given Ethics Approval February 2022

    13 years ago in another Norwegian newspaper .... Google translate: "Not depression. My daughter Jennie and I were very surprised by the debate post "ME: Both body and soul" by Vegard Bruun Wyller, Kirsti Malterud, Bjarte Stubhaug and Lillebeth Larun on November 19."...
  11. MSEsperanza

    Wego Health Awards: An opportunity to recognise people and groups in the community

    https://twitter.com/TomKindlon/status/1264661372195024896 https://www.wegohealth.com/2020/05/21/lifetime-achievement/ see also https://www.s4me.info/threads/me-advocates-groups-you-can-endorse-vote-for-in-the-wegohealth-awards-2019.10241/ and...
  12. MSEsperanza

    S4ME letter to Cochrane re: proposed new Exercise for Chronic Fatigue Syndrome review and patient involvement

    Thank you everyone who have pursued the requests the letter asked for. So the link now is added at a place a bit less easier to ignore, and it says: 'A statement from the Editor in Chief about this review and its planned update is available here...
  13. MSEsperanza

    Lightning Process study in Norway - Given Ethics Approval February 2022

    From Phil Parker's Lightning Process(TM) website on what he claims to be "Research which supports the theories of the Lightning Process": "Dr. Bruun Wyller says: ‘[...] Based upon our findings, we have formulated a theory of sustained arousal in CFS, which seems to correspond quite neatly to...
  14. MSEsperanza

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Just wanted to drop an older not-yet-posted comment I found in my drafts folder (on David Tovey's answer regarding objective outcomes in his response to Caroline Struthers' complaint) : @Caroline Struthers: "Using only subjective outcomes in unblindable trials is terrible methodology. This is...
  15. MSEsperanza

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Description now removed/ sentence replaced with "See also this list curated by Hilda Bastian...." Link to the 'Open sheet for additional links related to the Cochrane review on exercise & ME/CFS': https://docs.google.com/spreadsheets/d/1Z6ktpOxGOYna6ApB5P49pCd_V6QMew6eiptwpFCFrH8/edit#gid=0...
  16. MSEsperanza

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    https://twitter.com/hildabast/status/1263260110509359104 Thank you Hilda, also for the link to the 1st list. I didn't suggest a DIY list, but was thinking you could put on that list all submissions you think don't fit the other list. Actually I like the idea of an open document. It just...
  17. MSEsperanza

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    https://twitter.com/hildabast/status/1263245268666875904 Apologies for any misunderstanding and thanks for whatever you did with regards to putting a warning flag on the old and current reviews. Still hard to trust anyone at Cochrane until there is transparency. Also, still no answer from...
  18. MSEsperanza

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thank you once again Caroline -- I didn't send it and am not sure Hilda will spot everything posted here, so yes, would be great if you could do this.
  19. MSEsperanza

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Maybe the Dagbladet won't publish letters in English? I think it would be good to publish it here on S4ME so anyone who wants to use it could link to the complete text; also if anyone wants to translate it into Norwegian they could add the link to the original so you won't have to authorize a...
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